Hello all,
I have been feeling so frustrated since last week thinking I was going to receive my Facial, Cranial Botox as a Hyperhidrosis treatment.

We drove 50 miles round trip and waited almost 45 minutes to be seen by my lovely Dermatologist, when she took me back  I placed my bag on the window sill next to the procedure bed thinking this is where I would have my treatment done.  I could see her looking and she told me to sit in the chair near her.  (I thought she prob wants to go over the side effects and make sure all meds were the same?!)

I sat and waited and she smiled weakly and said, “The are not allowing you to have the Botox treatment as they see if as a cosmetic procedure rather than a medical treatment!”

She apologized and I know in my heart if she could have made it happen she would.

I was gob smacked and told her I thought I was having it done? I said the her nurse had called telling me so?!  She said she was sorry for this and that it was a miss communication.  She thought it best to have her deliver the news in person rather than over the phone.  I told her thank you and asked why!  All I wanted to do was burst into tears and scream.

She said they saw it as a cosmetic thing rather than a medical treatment and I challenged her and said big organizations claim that most insurance companies are now seeing Botox as the big treatment for this and why wont mine?  She said they don’t understand, they don’t get it!  Even though it stated all the other tried treatments failed.

I then proceeded on and said, “do they think I want a wrinkle free scalp and hair line?” I’m not asking to have this done any where else!  I could see if I was having it done around my eyes and other areas.  She replied they just dont get it.  I them told her how this affects me on a daily basics.  She gets it, she really does but her hands were tied.

How are they EVER GOING TO GET HOW IT EFFECTS US ON A DAILY BASICS???  Can anyone answer this?  Until they walk in our sweaty bodies, they never will or if they have a close family or friend who suffers to really see the draining impact of life and hyperhidrosis.  They will never know how we turn down social events and fear ones we have to attend because they don’t understand or get it!

They will never know how we hide behind closed doors or wear dark clothing to disguise the sweating.  How we feel dirty and what it feels like to have to live in wet clothing.  To suffer yeast infections on our skin and chaff from the sweating.   How afraid we are of having to shake a hand or hold something.  How we have to change clothing often and ruin our clothing because of the smell and sweat stains that wont come out.  How we slip and slide in shoes or make them so wet and funky we have to replace them often.   How normal activities for everyone else turn into a sweaty night mare for us.  The fear of hot weather and humidity.

How would they feel, if they walked in our bodies for a week?

Do you think Hyperhidrosis would be more accepted and treated better?

I have a member in the forum the same way as I was a week ago!!   Crushed and in tears as she was told she could not have the oral medication they prescribe for this (even though it is not for Hyperhidoris) but used as one of the side effects is less sweating!  We take them because of this, regardless of their horrid side effects and dangers of being in prolonged daylight.  We take them because they give us some relief and peace of mind from the endless sweating.  Just like we do with hundreds of needles if WE  ARE GRANTED, Botox or Dysport as a treatment for this.  The only treatment currently to give us a few months break and less of the horrible side effects but it is like liquid gold, hard to get!   Do we blame the manufacturer or maybe Doctors or even the public for making it this way?  It is seen as a cosmetic procedure for vanity but what can give SUFFERERS OF HYPERHIDROSIS relief we are denied!

What can I tell her?!

I can give her the support and comfort she deserves as she is a beautiful human being who suffers and has become a dear friend.  She suffers daily not only physically but emotionally as they go hand in hand.  The emotional round about we are on daily would swing your head!  The thought and preparation of a day in a sufferers life if there is an social event would have you a basket case too!

How do I tell her that everything is going to be OK?  How do I tell myself?  With not having professionals understanding this skin disease, WHO IS?

I have a big event coming up in two weeks and had to pay for my own treatment, most are not cheap.

I have to give a big shout out to my wonderful Dermatologist in Austin, Dr Daniel Carrasco who does understand and did help at a discounted price.

We need more understanding on this and compassion from professionals.  More awareness need to be raised and if your with me let me know and we can fight against this together.  There needs to be more cheaper treatments available for us that don’t burn our skin, dry us out or can even cause heat stroke.

I hope you understand and I pray to God that one day we will all get the treatment we deserve while living with this social killer, self confidence drainer and self esteem robber sore,  they call HYPERHIDROSIS.