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My story,

I have had palmer hyperhydrosis since I can remember (I’m 25) and it has caused me no end of bullying through school with people not wanting to hold my hand etc.   I have tried all the creams available and, although they work well to an extent, they make my hands so dry and sore that I can’t use them for any length of time.

Since having my son I have also developed it in my armpits (and also a bit in my feet though not quite as bad) and now my problems have really started.

I work in a high school as a learning support assistant, and even though I wash everyday and use various deodorants etc. throughout the day, I have kids refusing to sit with with me because ‘I smell’ and now have my boss on to me trying to get occupational health involved as she has had ‘complaints from other staff’ about my condition.

I have explained many times that I am doing all I can to control my condition and that the last time I spoke to a doctor about it I seemed to know more than they did!  (So basically don’t think HE will tell me anything I don’t already know!)

Also I myself do not always notice any odor so I need the other staff support to tell me, but to no avail.   They are even telling me that if I don’t “SORT OUT THE PROBLEM” then I may not be able to CONTINUE WITH MY JOB!

I am also suffering with work related stress at the moment which is only exacerbating my condition, and now with them ‘on my back’ about it it is only getting even worse in both respects! (The only strategy they have suggested to ‘help’ is that I change my clothes at regular intervals during the day. With the amount I sweat this would be about every 2 hours or so to avoid any trace of sweat patches or smell so I would need 3 changes of clothes everyday at work! Plus I could just imagine the kids asking “Why have you changed your top Miss?”   So it is just not practical in my view!

I also have a problem with my amateur dramatics society when,  at the last minute I was given a very thick,  hot cloak to wear onstage.   I informed them of my condition and that I would be likely to faint with the heat and loss of water if I had to wear it,  (I once came VERY close to fainting onstage in the past and only just made it backstage before I literally collapsed in a chair!)   I was told to “GROW UP AND GET ON WITH IT“!                                                                             “EVERYONE SWEATS”,  and finds the cloaks hot but they just get on with it!”   Evey night of that show I used to just about make it through the scene and then have to rush to sit on a chair and drink loads of sports drink before I was fit for anything. even then if one of the older members wanted the chair I was expected to give it up as I was ‘Just being silly!’

I really think more should be done to, PROMOTE AWARENESS,  for this condition to the general public and medical staff,  as people seem to have no idea about how debilitating this condition is or how hard it is to ‘just deal with it’. They seem to think we can just stop the sweating but we can’t!

How we can all relate to this, what would you advise our kind member?  We all suffer the same.  Please join us in our battle to raise awareness on this awful affliction we all share.  Feel free to leave comment, join us in our forum www.verysweatybetty/forum

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