By our very own Denise, Following her, Help Wanted….
For the Record,

If any of you have read my last post, and thought I might be implying that Hyperhidrosis does not compare to scleroderma and we have no right to complain, that was not what I was trying to say, not at all.

My point is that Michele Mayer was a highly educated woman, her husband is in fact a physician, Moreover Michele was highly respected in the medical community, could speak the lingo, knew what she had and it still took 6 years to get a proper diagnosis. In that 6 years she was aware of what medications, procedures and protocols were available to treat the early stages of her disease.

Yet, because of her inability to get a proper diagnosis, all of these avenues were closed to her. We will never know if she could still be alive today, had she been diagnosed in a timely matter. Moreover, Michele had done her research and frequently went head to head with the doctors, who repeatedly tried to prescribe outdated medications, that had been shown to be wholly ineffective, while fighting her requests for another. Albeit, the truth is there is very little to help people suffering with Scleroderma. As her skin turned into a shell like structure, her vital and unseen organs were doing the same. This disease is a killer, very little is known how to treat it, and it is a death sentence. It may be 3 years it may be 5 years, but with the passing of each year, reduced mobility is a given as ones internal organs turn to stone.

Yet, Michele worked on her own memorial, did what she could with her children, and wrote about her life, her doctors, her friends, family, as the disease slowly turned every breath into a struggle. She had to fight the medical community every step of the way, as the disease continued to turn her internal organs into stone.

How do we proceed?   Does any of us hold a Doctorate in Public Health? How do we proceed to get the attention of the medical community? How do we proceed? I continue to write letters, and be ignored.   I sent a letter to a doctor here in town, he is mentioned in one of Suzanne Somers books as a surgeon who turned away from surgeries for excessive sweating to a more natural remedy. NOTHING, no response.

What should we do to be heard?

Help us fight to be heard, fight with us to be treated for our medical disease/disorder.  We deserve this.  Write you story on living with Hyperhidrosis, we are still in the, Dark Ages and will continue to be if we don’t stand our ground and help raise awareness.  You can send your story to Anne, Beverly, Denise, kimberly in our friendly forum, we can keep it all confidential but our little voices, can make one BIG ONE.  So please help.

Denise

If you have problems with groin sweating, please visit Denise’s website www.coolwrapps.com