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Hyperhidrosis Support Group
VSB: Raising awareness about hyperhidrosis and offering impartial support and advice to sufferers
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    November 21st, 2011VSB AnneSite News

    Hello all,

    I thought I would approach this subject as most of us seem to be complaining about what to wear, what if I sweat.  We all have the, “What If’s?”
    I know I am, and as time is getting closer to Thanksgiving, Christmas office parties, dinners, dances, Ball’s, schools plays, shopping we all tend to suffer from pre-festivity panic.

    We tend to panic and make ourselves worse than what we began.  If we just looked at this simply we could erase a lot of our, “What If’s”
    If you are like me and my life has been so busy this year has flown and were here again!  I am currently getting ready to move and I have a big ball approaching.  I have tried to get out of it but looks like I am going to have to attend.  I have been listening to the other wife’s and their excitement on dresses and hair do’s and such and I wish or I pray I could also get as excited as them and wear the lovely clothing.  But in reality I can’t!

    I have thought about going back on my oral medication for a few weeks but I am still battling a sinus infection and will probably not help matters right now.

    Can you join me in making a list on what we should do and what we should not do?  Here are some of my sugestions.
    If daytime office lunch, dress in layers and battle your way like a rugby player, American Football player, to get that seat next to the window, and as the lunch begins and you feel your sweating arrive, take off your layers, ask to open up the window and if your a woman blame it on a hot flash…yes we do have an advantage on that one, sorry Gentlemen.

    If an office party, again dress in layers and make believe your an onion and peal them off, also if windows available use them or take in a power hand fan or use a folder to cool you down lol..I’m beginning to smile here now as have been there done all the above and will carry on.

    Thanksgiving dinner, Christmas dinner..one of the worst as so much preping and cooking can make for a hot hell hole before it even begins, If you can make sure someone else cooks or go out..laughing hard now! 

    OK, if you are cooking then do what I always do, buy a already cooked turkey and prepare most of your sides and deserts the day and evening before, takes off so much stress and you can sweat all over everything and they will never know, with 5 fans blowing on you from every angle, kidding about the dripping in food sweat…tee-hee!

    Dressing for the occasion can be the hardest of them all and the daunting task we all fear….What am I going to wear that wont show my sweating, wishing you could just crawl into a dark hole and remain there.  I would advise a very light material or dinner jacket, nothing that is going to cling to the body or create more heat. 

    I swear by dark clothing, hides a multitude of sins, including sweating..ha!  I love black and silver as they look so good together, a bit of bling and you can’t go wrong.  What I have found helps also is wear some glimmer lotion as if the sweat does arrive you can’t really see it, or as my girls like to call it, Fairy dust :)

    For our hand sweaters, I encourage a cold or half frozen water bottle always remain in your hands and you can use the frozen water melting as your excuse.  Also have a face cloth hidden in a pocket or purse.  For head sweaters also, go to the bathroom and mop down! 

    For the ones whom like to have a few drinks, like me, I always have two beers before as this will trigger my sweating and once my body has had the initial shock of alcohol it will not be bad as first arriving and having a drink!!!  I tend to go bright red in the chest, neck and face…I wear a shawl and large jewelry to try to hide this.

    So my dear friends, members, fellow sweaters, brother and sisters, I encourage you to add your little secrets on what you do to keep the sweat at bay.

     

    Will you be on the naughty or nice list this year?  Hee hee…you can use your imagination and help others achieve less sweat this SEASON.
    Hugs,

     

    Anne x

     

     

     

     

     


     

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    November 13th, 2011VSB AnneSite News

    I want to personally thank a new member for allowing us to post her story.  She knows how important this is for us all in raising awareness on this awful skin disease, that brings us all misery every day of our lives. 

    This is a very moving story of inspiration, bravery and courage. 
    We want to thank you from the bottom of our hearts….

    Anne and Beverly xxx

     

    If you want to join in our cause on, “Raising Awareness” Join the cause, we have a section in the forum for this HAC, Hyperhidrosis Awareness Campaign, good things are happening. 

    I always say lots of little voices can make one big one.  If you want to join our cause then please send your story to our very own Beverly at betty@verysweatybetty.com   She will be glad to post it on our front page and if requested all will be confidential.  Thanks for helping us here at Very Sweaty Betty, your friendly sweaty support group.

     

    Vicki’s story,

    My Story to date,
    I’m Vicki and I’m not ashamed to say that I am an Hyperhidrosis sufferer.  It it embarrassing but I’m not ashamed.
    I have had Hyperhidrosis since I could walk.   It started with my hands, feet and underarms and I noticed more at the tender age of 5-6 in Infant School.   I used to have to write whilst I had a clump of tissue in my hand to wipe up the dripping sweat from the page.   I also had to stuff rolled up tissue under my arms to stop my uniform from getting drenched.
    Summer time obviously the worst season for me, but it affected me all year through. Doctors used to tell me to hold my hands under cold water for a minute to cool them down, which did not work.   I was then tried on something similar to Driclor where it was rolled on my affected areas and had to sleep with socks and plastic gloves on. This worked for a short while but then the sweat faught its way through!

    When I approached 13 I was advised to go and see a Dematologist Consultant in Manchester Infirmary. They told me about the endoscopic thoracic sympathectomy surgery, also known as ETS.   They told me that they would make a small incision in each arm pit and cut some glands to help cut down the sweating. They said that there was a possibility of the operation making my eyes droopy.

    As I was modelling at the time,  my Mum thought it would be best for me to make this huge decision when I turned 18.   So I just learned to live with it.
    Always ensuring I had tissue in my bag,  I could never wear a top or dress without sleeves as there would be nowhere for me to put the tissue under my armpits.   I hated having to shake hands with anyone, especially for job interviews as I would always have to explain myself (i still do).

    Eventually,  in 2003 when I was 21,  I bit the bullet and decided to go for the ETS operation/surgery as I couldn’t live the way I was, being an Entertainer and in the public eye 24/7.

    I had a consulation first where they told me about collapsing my lungs during the op (something they never mentioned before) and the “slight” possibility of a “small” amount of sweating on my stomach as it would need somewhere else to go. I thought that I could cope with my stomach, if it stopped under my arms and hands (feet I could cope with).
    After the surgery, the first week was brilliant.   I went back to Mallorca where I was working,  then disaster struck!
    One night I literally couldn’t gasp for my breath. I was rushed into hospital and after 3 days of ECG and MRI scans/tests, they found fluid on my lungs, something that had accrued in Manchester Hospital.
    I was then in hospital for a further 7 days.   Once sorted,  I flew back home in the October and realised that my sweating was ridiculous.   I didn’t think anything whilst in Mallorca due to the heat anyway.   I found that my “slight” amount of sweating had increased to my forehead, back, stomach, armpits, hands, feet, legs.   Basically EVERYWHERE!.
    There was nothing that Manchester Infirmary could do about it either.   I did have Botox in my armpits for a short while in 2005, but my local hospital withdrew the funding unfortunately.   Botox was brilliant and lasted for 6-8 months.

    Since joining HSG and Very Sweaty Betty,  I have found out about some bladder control pills called Oxybutynin.   I consulted my GP who was more than happy to try me on them.   I do notice a bit of a difference but with how severe my sweating is,  I think that I will need to be increased to a bigger doseage.

    I now have my very own Iontorphoresis Machine because my local PCT won’t fund any sessions in hospital because in their words, “I am, low priority”!!!
    I will start using this, this week, so fingers crossed for my future. It is horrible living like this and not being able to wear cloths without sleeves; especially in the summer or dancing in a pub with tissue stuck to my forehead or shoes without tights/pop socks on, but i’m not ashamed to tell my story and increase awareness of this awful condition. Finally I do urge anyone who’s thinking of having ETS – PLEASE, DON’T DO IT!



     

     


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    November 9th, 2011VSB AnneSite News

    By our very own Denise, Following her, Help Wanted….
    For the Record,

    If any of you have read my last post, and thought I might be implying that Hyperhidrosis does not compare to scleroderma and we have no right to complain, that was not what I was trying to say, not at all.

    My point is that Michele Mayer was a highly educated woman, her husband is in fact a physician, Moreover Michele was highly respected in the medical community, could speak the lingo, knew what she had and it still took 6 years to get a proper diagnosis. In that 6 years she was aware of what medications, procedures and protocols were available to treat the early stages of her disease.

    Yet, because of her inability to get a proper diagnosis, all of these avenues were closed to her. We will never know if she could still be alive today, had she been diagnosed in a timely matter. Moreover, Michele had done her research and frequently went head to head with the doctors, who repeatedly tried to prescribe outdated medications, that had been shown to be wholly ineffective, while fighting her requests for another. Albeit, the truth is there is very little to help people suffering with Scleroderma. As her skin turned into a shell like structure, her vital and unseen organs were doing the same. This disease is a killer, very little is known how to treat it, and it is a death sentence. It may be 3 years it may be 5 years, but with the passing of each year, reduced mobility is a given as ones internal organs turn to stone.

    Yet, Michele worked on her own memorial, did what she could with her children, and wrote about her life, her doctors, her friends, family, as the disease slowly turned every breath into a struggle. She had to fight the medical community every step of the way, as the disease continued to turn her internal organs into stone.

    How do we proceed?   Does any of us hold a Doctorate in Public Health? How do we proceed to get the attention of the medical community? How do we proceed? I continue to write letters, and be ignored.   I sent a letter to a doctor here in town, he is mentioned in one of Suzanne Somers books as a surgeon who turned away from surgeries for excessive sweating to a more natural remedy. NOTHING, no response.

    What should we do to be heard?

    Help us fight to be heard, fight with us to be treated for our medical disease/disorder.  We deserve this.  Write you story on living with Hyperhidrosis, we are still in the, Dark Ages and will continue to be if we don’t stand our ground and help raise awareness.  You can send your story to Anne, Beverly, Denise, kimberly in our friendly forum, we can keep it all confidential but our little voices, can make one BIG ONE.  So please help.

    Denise

    If you have problems with groin sweating, please visit Denise’s website www.coolwrapps.com

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    November 8th, 2011VSB AnneSite News

    I really hope this inspires you all, it did for me.  Thank you again my dearest friend, Denise, what a talent in writing you have and for sharing this great info and inspiration with us.

     

    Help Wanted…

    Last night I was watching the news and saw a story about a book: Our Bodies Ourselves, it was the 40th anniversary of the original publishing of the book. 40 years, wow, I have a copy of it and I had forgotten how much flap there was about the book back then. But there was a real bruhaha over this book and it was just a small group of women who started it. The horror of it all, a group of women, the Boston Women’s Health Book Collective had the unmitigated gall to gather information from women, about their own bodies, sharing information even Doctors were not giving their patients, and publish a book so millions of women would have access to information about their own bodies. There was a series of interviews (on the news) by many from so long ago, and some recent. Dr. Susan Love was talking about how this book was what in fact drove her when she was in medical school. As a student Susan Love was learning what was being taught to up and coming Ob/gyns, and it was sorely lacking.

    This may be surprising to some, but to others, not so much. I believe the medical profession would prefer to go back to the good old days when any “female” complaint was simply treated with leaches. Fortunately, women are no longer banned from higher education allowed and vote, so it is highly unlikely that will happen. But at least it gives us a point of reference for what we are dealing with: The Medical Community.

    Sometime ago I read a blog entitled: A Diary of a Dying Mom, by Michele Mayer. Michele Mayer started as a nurse, then went on to pursue a Masters and a Doctorate in Public Health, which earned her the title of Doctor. She was not a physician, but had achieved a rather lofty status, not that it helped her much. It took her over 6 years to be correctly diagnosed as having Scleroderma.

    Repeatedly doctors told her she did not have this disease, and she honestly did not want it. There is no cure for Scleroderma, what it does is turn the skin into an exoskeleton, as well as vital organs, it is an autoimmune disease that starts up for no apparent reason. There is a medical term that indicates unknown origin, that escapes me at this moment…Idiopathic, is the term. At any rate, if you have the time to read it, you should read this blog. Yes, Michele Mayer died about 2 years ago, but what the lesson is: she lived, and battled the medical profession every step of the way, along with a disease that eventually took her life. Michele Mayer presented a paper detailing what is is to be a “difficult patient,” and how proud she was of it. Going against “the doctor” is not pleasant ; getting a doctor to listen to the patient is almost impossible.

    SHOULD WE ALL WRITE A CHAPTER WHAT LIVING WITH HYPERHIDROSIS REALLY IS AND SELF PUBLISH IT? 

    Would it help?  I CAN GET NO RESPONSE!   I have written Dr. Love about Hyperhidrosis, I have written Dr. Oz. No response. That is all I get: nothing. But I am going to keep writing letters, in an attempt to be heard. Occasionally I go back and reread Michele Mayer’s paper on being “a difficult patient” and keep on, because I can. Hyperhidrosis is still a better card to draw than Scleroderma any day of the week.

    Denise

     

    I admire Denise as she stays so strong and refuses to give up.  I also am battling with raising awareness on this, I feel like I hit brick walls daily.  No one ever gets back to you or even members wont help.  Were not asking a lot, a short story, blog on how it is to live with this skin disease daily.  We are suffer daily and why not help ourselves along the path to get better treatment, a Doctor or medical staff who are trained to help us.

    I’m tired of being fobbed off with another oral med that is not even related to my Hyperhidrosis, living in a fog from the side effects or another harsh topical treatment that burns our skin.  PLEASE HELP.

     

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    November 3rd, 2011VSB AnneSite News

    Hello all,

    I have been asking for members help to try and get the awareness out for all to see and to encourage a guest blog on a day in their lives or a certain story you can share with us that shows what it is like.

    I came up with the perfect title and many have agreed with me that it is perfect…how much has treatment really changed in the last 10 years?!  Not much.  ETS is less and being banned in certain countries around the world. 

    I would love to feature your story and let people see how we suffer from this awful affliction.

     

    Think about it and get writing :)

     

    Our first guest blog is our very own Denise, she is such a talented lady and an amazing friend.  Denise also invented the Wrapps,  www.coolwrapps.com which have saved many of us from embarrassing situations.   Denise is a very talented writer also, enjoy.


    The Dark Ages, Living with Hyperhidrosis

    For many of us, we have discovered that most health care providers are wholly unable to understand what it is to be the patient. Largely because, they are the Doctor and have spent years of their lives learning about body parts. Sadly, that is reflected in treatment of the current ailment, sprained ankle, migrain headache, or broken bone that necessitated your visit. You are simply a body part, to be attended to. The whole person insignificant. This is the American way; to treat pregnancy as a disease; while we have managed to turn our birth rate into one that rivals any third world nation in the world. How did things come to be this way? Moreover, is there anything we do to change it? It will be an uphill battle, but having lived for as long as you have with Hyperhidrosis, can you think of any better training?

    A while back, Dr. Oz did another segment on hh. The advise to those of us suffering from HH was simple: “wear a little extra deoderant and don’t worry about it.”   Though I had sent Dr. Oz an email on a previous occasion, this was too much. I wrote  Dr. Oz a letter asking him to please refrain from doing any more segments on HH.   I asked Dr. Oz how many times in a day did he advise the application of deoderant on the scalp, back, back of the knees, etc.   Explained to Dr. Oz that I understood he did not believe in HH.

    I had a doctor (here where I live,) who did not believe in depression, and refused to write me a prescription for antidepressants.   I understand Dr. Oz does not believe in HH, this other doctor did not believe in depression. But it is still hurtful to those of us who suffered from either, or both.   So please stop doing segments on HH, it is only hurting us as you do not have a clue.

    I sent the letter to his TV show, in New York, and it was returned to me, unopened, with a big black question mark by my name on the return address.   I immediately looked up his work adress, and enclosed an other note on top of the unopened, returned letter about how he really knew how to make his viewers feel important, and put it back in the mail. No, I have not heard from him. I do not expect to. He is an important man, a Doctor, for crying out loud.   He does not have time to listen to his viewers, he has to do a surgery, a show. He is a busy man, much to busy to learn that he does not know what he is talking about.   Why should he listen to his viewers or patients? We did not go to medical school, he did. And that appears to be the prevailing attitude of most doctors, the M.D. stands for Major Diety. It does not, and I am so tired of this attitude. The medical community can not even decide if drinking coffee is good or bad for us, for crying out loud. Why do doctors have the right to decide which disease they believe in, or treat? Why? This I do not know.   I do know, that it is difficult to find a decent doctor, one that will listen. And if it takes raising our voices to be heard, or voting with our feet, each of us must decide which course of action to take.

    Denise

     

    Denise, we feel your pain and know how frustrating this is, how about you get in touch with my good friend Dr Danial Carrasco.  He was the only one who fully knew about living with HH, his brother suffers from this disease and he was patient and understanding.  He also trains other Doctors about Hyperhidrosis.  I doubt I will ever find another Dr so understanding again.

    Dr Carrasco is our Doctor on board, if you have private questions to ask him in regards to your Hyperhidrosis PM myself, Anne, Beverly, Denise or Kimberly and we will make sure he gets your questions.
    The Dark Ages is open for all comments and if you want to feature your guest blog, please let me know on the forum or our Sweaty Betty FaceBook page and we can make this happen.

     

    Lots of little voices can make one huge voice, lets get heard and lets make a difference.

     


     

     

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    October 30th, 2011VSB AnneSite News

    Want to thank our member and guest for this wonderful blog. You are a pure gem.

    If you want to help us RAISE AWARENESS on living with Hyperhidrosis, please join in our cause.  We are one of the highest viewed sites and our Alexa ratings are high.  What could be better than trying to get our little voices out to make one big one.

     

    My story,

    I have had palmer hyperhydrosis since I can remember (I’m 25) and it has caused me no end of bullying through school with people not wanting to hold my hand etc.   I have tried all the creams available and, although they work well to an extent, they make my hands so dry and sore that I can’t use them for any length of time.

    Since having my son I have also developed it in my armpits (and also a bit in my feet though not quite as bad) and now my problems have really started.

    I work in a high school as a learning support assistant, and even though I wash everyday and use various deodorants etc. throughout the day, I have kids refusing to sit with with me because ‘I smell’ and now have my boss on to me trying to get occupational health involved as she has had ‘complaints from other staff’ about my condition.

    I have explained many times that I am doing all I can to control my condition and that the last time I spoke to a doctor about it I seemed to know more than they did!  (So basically don’t think HE will tell me anything I don’t already know!)

    Also I myself do not always notice any odor so I need the other staff support to tell me, but to no avail.   They are even telling me that if I don’t “SORT OUT THE PROBLEM” then I may not be able to CONTINUE WITH MY JOB!

    I am also suffering with work related stress at the moment which is only exacerbating my condition, and now with them ‘on my back’ about it it is only getting even worse in both respects! (The only strategy they have suggested to ‘help’ is that I change my clothes at regular intervals during the day. With the amount I sweat this would be about every 2 hours or so to avoid any trace of sweat patches or smell so I would need 3 changes of clothes everyday at work! Plus I could just imagine the kids asking “Why have you changed your top Miss?”   So it is just not practical in my view!

    I also have a problem with my amateur dramatics society when,  at the last minute I was given a very thick,  hot cloak to wear onstage.   I informed them of my condition and that I would be likely to faint with the heat and loss of water if I had to wear it,  (I once came VERY close to fainting onstage in the past and only just made it backstage before I literally collapsed in a chair!)   I was told to “GROW UP AND GET ON WITH IT                                                                           “EVERYONE SWEATS”,  and finds the cloaks hot but they just get on with it!”   Evey night of that show I used to just about make it through the scene and then have to rush to sit on a chair and drink loads of sports drink before I was fit for anything. even then if one of the older members wanted the chair I was expected to give it up as I was ‘Just being silly!’

    I really think more should be done to, PROMOTE AWARENESS,  for this condition to the general public and medical staff,  as people seem to have no idea about how debilitating this condition is or how hard it is to ‘just deal with it’. They seem to think we can just stop the sweating but we can’t!

     

    How we can all relate to this, what would you advise our kind member?  We all suffer the same.  Please join us in our battle to raise awareness on this awful affliction we all share.  Feel free to leave comment, join us in our forum www.verysweatybetty/forum

    The more we help the STRONGER WE BECOME.

    Tell us your story, join the forum to make this possible, help for the better cause.

     

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    October 25th, 2011VSB AnneSite News

    Hello all,
    It has been a while since my last confession, err I mean post!…Just joshing :) I have brought up a very important subject and I think once you know what your MAIN TRIGGERS are you may be able to avoid or have your Hyperhidrosis under better control.

     

    We have been chatting about it on our wonderful forum and Private Facebook page,  we all seem to complain about the same things!!!!

     

    If you have just been diagnosed with Hyperhidrosis then this is the place to be and find out what can help you and what not to do, plus our friendly members and us the volunteers behind it all, with out us there would not be a VSB, I thank each and every one of you from the bottom of mine (Anne), Beverly and Kris’s hearts.  For making it a special place to come and find the support you need while living with this awful affliction.

     

    OK, TRIGGERS…
    They are out there and we do digest most of them daily with out even giving it another thought or sit on it or try to avoid it.

    I would love the input on this and if I miss any out please add to my Trigger list.
    What turns me on the most is,

    Humidity,

    Sunshine,

    Caffeine,

    Anxiety,

    Stress,

    Tobacco,

    Alcohol,

    Spicy foods,

    Cooked foods,

    Sitting still,

    Movement,

    Lotions, hand creams or bubble bath,

    hot showers or baths,

    Smells,

    Time of the month for our Lady members,

    Menopause, pre monopause,

    Our # 1 hate of all is , Plastic chairs or anything plastic or vinyl…this is one of our huge pet hates!  Ban the plastic chair !!!

     

    While suffering from TRIGGERS it is best to recognize them and try to avoid them or adjust them, for example, I love coffee, instead of drinking it hot I have compromised and now drink it cold with ice.  Does not trigger me as fast and I have really come to enjoy it.  Cut down on that spicy curry that makes you sweat from head to toe, spicy is not a HH’s friend and will make you break a sweat and turn bright red from chest to face.

    Hand creams or body lotions, potions and all can be awful for us also, especially the woman as we tend to get sucked into it more than men, plus if you live in a dry winter climate the need of these is vital.  I do find that if I do lotion up after a shower in a matter of ten minutes it is sliding off me and face cream always is a challenge for me!!  I tend to get so much sweat under my eyes and top lip that I can’t apply any concealer or powder.  (Can’t wear foundation as that just slides off too!)
    One of our worst is every day life, in a social society we live in, we can’t always avoid this or hide away with a fan blasting on us…we have to use our savie and do the best we can, there are ways of concealing your sweating so others can not detect it.  (Lots of hints and tips on our forum.)

    Anxiety, stress as it comes hand in hand with Hyperhidrosis….rather like what came first, the chicken or the egg theory?  What came first for us?  The sweating or the stress that made us sweat?  Rather a catch 22, or did they both arrive together?  Give that some pondering.

    With Christmas around the corner we all know that Christmas staff parties will begin and so on, we have to attend at least one.  I don’t know about you but I cringe and want to say, “No way, I am not going”  But I have to at least one.  The panic begins….full blown sweat on on what can I wear, will they see my soggy mess?  Can I please just go with a paper bag on my head?  In reality, No we can’t.  We have to think outside the box and think of how our HH will behave. 

    What I am trying to tell you is know what triggers you, write it down, could be something I have missed.  Once you know your main ones than avoid them if your in the social eye and this will help your self esteem and confidence.

     

    Ohh, Halloween is around the corner and finally I get to wear a mask or a paper bag on my head so no one sees the sweat, is that a trick or a treat?
    Come on in and discover so much more at our forum, we are now installing a chat room to talk privately about your sweaty bits and bobs, hope to see you there.

     

    Anne, Beverly and Kris xxx


     


     

     

     

     

     

     


     

     

     

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    October 7th, 2011VSB BeverlySite News

    Forum link

    Meeting someone new is always a big thing, no matter who you are. Sometimes, even meeting people you already know can be nothing short of a nightmare, especially if you suffer with Hyperhidrosis. In fact, when you have an embarrassing illness, the stress involved in meeting anyone new for the first time can be enough to put you right off. I don’t have to point out that meeting a new potential partner is one of the biggest things you’ll ever do, this could be the person you spend the rest of your life with.

    This subject has come up a few times lately. It seems love is quite possibly in the air! Some of our members have recently mentioned a potential new romance on the horizon. I think it’s probably got something to do with the cooler weather, it seems to go a long way to make us feel better about ourselves. Summer is incredibly stressful and we pretty much live to get through it as intact as we possibly can. It’s always a huge relief when September arrives, we know there’s around six months before we start hotting up again.

    With all that pressure on you, one of the first things that will go through your mind (especially in the warmer weather) is your Hyperhidrosis. Will you sweat when you’re on a date? When should you tell the other person? What would you tell the other person? How will they deal with it?

    Well, I can’t really answer the final question because the truth is, it’s not for everyone. The chances are that you probably have an 90/10 chance they will be fine with it. Most people won’t have a problem with it. Before my HH kicked in really badly, it used to come and go. When it went, I’d not give it a second thought. During one of the ‘dry’ times, for a few weeks/months I had a boyfriend who suffered with it. We’d hold hands, I’d wipe mine down my jeans when we stopped holding hands. It didn’t occur to me to mind. I vaguely remember ‘the conversation’ we had about it, I’m sure it went something like “why are you hands always wet?”. Him: shrugged “I dunno”. Me: “oh”. And that was that. There are some who can’t deal with it, but that’s life, it’s nobody’s fault. We need to see it for what it is, honesty. It’s one of those ‘take it on the chin’ things. Chances are, with those odds, you may not even have to deal with a moment like that. Even if you do, you’re not alone. But, when do you mention it, and how?

    Timewise, there are two ways of doing this. You can either be up front and lay your cards on the table. The advantages are that if the person does have a problem with it, you can walk away from the person without having spent the time fretting about how they’d take it – and maybe even getting to like them. The only real disadvantage is that at this point in your relationship, they don’t know you. This would immediately put you at a disadvantage and maybe even give the sweating a chance to dictate the outcome rather than you being in control. The person might get the impression that it’s a big thing in your life – and if they think you see it as a problem, then you’re taking the chance that they will, too.

    The other option is to take it as it comes. I call this the ‘mermaid/merman’ technique. You can call it what you like, but if someone asks you why you have wet hair or wet hands, it helps me to give it a ‘nice’ name. Just the word ‘Hyperhidrosis’ sounds depressing to me. Replying with “Oh, that! I’m a mermaid!” sounds more confident and less like I have a problem – and doesn’t bring the mood down. There’s only so much you need to tell anyone and it’s just another ice-breaker. Only say what you’re comfortable with.

    I’ve tried both ways and I’m more comfortable with the this technique. The advantages are – you’ve come to like each other and they might see past the sweating side of things a little easier because they have had a bit of time to get to know you. You’re also not imparting that it’s a disproportionate issue for you. Even if it feels it sometimes is, things do change. There are new products coming on the market on an almost weekly basis. Scientists are currently looking into isolating the faulty gene that causes this – once they’ve done that, chances are it’s a matter of time before they can work out an effective treatment or maybe even a cure. You can’t rely on a cure though, you still need to be realistic. It would be an amazing bonus if it happens.

    As for when the time is right, well, that’s completely down to you. You’ll have got to know the person a bit better by this time, even if it is only three or four dates in, you’ll know you like each other by now, so it’s just a case of picking your moment. Waiting for the topic to come up naturally can often be the best way. It will tell them that you have the confidence to deal with it and you don’t let it dictate to you. Obviously as time goes on, they’ll get to know how it really is for you. Whatever you do, do it with confidence. You know what they (I always wonder who ‘they’ are) the more confident you pretend to be, the more confident you’ll feel. That is one of the biggest attractions we could offer a potential new partner. You are you, your HH is just ‘something that happens’ to you that you have little control over. Don’t let it sabotage the good stuff.

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    September 4th, 2011VSB BeverlySite News

    I’m going to give it a go. I’ve been meaning to do it for some time (my doctor thinks I may have Coeliac/Celiac’s disease) but I’ve had so much on that I’ve not had the time to research going gluten free, nor have I had the energy to do anything about making anything more than toast or cereal, thanks to the Fibromyalgia/Polymyalgia/Adenomyosis. Hopefully now it’s starting to cool down a bit I will have a little more impetus.

    Forum link

    Today I found a blog, I wasn’t doing anything but doing something I’ve not had time to do for ages – having half an hour’s pure unadulterated surfing, carefree and following interesting looking links! I came across something that has summed up a huge part of the internet over the last five years. I call it the dark-side of the net – it’s people who have such sad little lives that they feel they have the God-given right to issue death threats, speak abusively about the subject’s life, appearance and even their children. Sick individuals who, for some reason, feel so consumed by their hatred that there’s nothing they wouldn’t say. I almost wept when I read one such comment – “I hope a paedophile gets your child”. I know, it’s unbelievable and unforgivable. All that on one woman’s blog and recipe site about being gluten free.

    I’m really glad I found the blog, I’m now going to take my doctors orders and see if I can’t help my hyperhidrosis – and my general health – by going gluten free. There’s a lot of evidence to suggest that rethinking your diet will help your sweating, you only have to google “hyperhidrosis gluten” to find link after link after link.

    Many thanks to Shauna James Ahern for many things – her outlook on life, her dedication to her gluten-free way of life, her blog and recipes – and most of all, to her unhinged ‘haters’ whom without, I would never have found this lovely lady or the momentum to sort out my diet.

    Now, who’s up for going gluten free? See if we can’t kick Hyperhidrosis’ butt together?

    Gluten free girl’s website

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    August 9th, 2011VSB BeverlySite News

    As promised in our recent newsletter, we have another new giveaway for you all!

    FORUM LINK

    Kleinerts has been around for many years and brought many new products to the Hyperhidrosis market.

    We have TEN free boxes of their Sweat Shield Wipes to give away to ten lucky recipients. Each box is enough for up to two whole months of protection against sweat. Each box is worth $16.99 so it’s a prize that’s well worth having.

    What could these wipes do for you?:

    - CLINICALLY TESTED
    - NO IRRITATION WITH EXTRA ALOES ADDED
    - WATERPROOF THROUGH SHOWERING
    - EASY TO APPLY ANYWHERE-CONVENIENT PACKETS
    - SAFE FOR UNDERARMS, FACE, HANDS, CHEST, BACK OR FEET
    - (PLEASE KEEP AWAY FROM YOUR EYES)

    Sweat Shield® safely and effectively treats hyperhidrosis and excessive sweating anywhere with a simple, once-a-week application.

    Sweat Shield® is formulated to safely block the sweat glands, protect against irritation, and soothe your skin.

    Increase your confidence and save on laundry bills while Sweat Shield® keeps you dry all day, every day!

    How Does Sweat Shield® Work?

    Sweat Shield® is a liquid formula, soaked on a soft, non-woven pad. Once a week before bedtime, open one of the packets and dab (do not rub) the disposable pad thoroughly under the arms within the hairline. Allow your underarms to air dry for a few minutes, and then go to bed. During the night when your sweat glands are less active, Sweat Shield® will safely form a block in your sweat glands that will last a week. It will not wash off, it does not leave any film, and you won’t even know it’s there, except that you won’t be sweating. In the morning you can shower, shave and get on with your life, sweat free. The Sweat Shield® formula and its application method was created by a clinical research lab who has many years of research experience in the production of antiperspirant products.

    HOW TO ENTER:

    This free-to-enter giveaway competition couldn’t be simpler to enter.

    1. Send an email to kleinerts@verysweatybetty.com
    2. You MUST include ‘kleinerts giveaway’ in the subject line
    3. You MUST include your verysweatybetty forum member name in the body of the email
    4. You can enter as many times as you like – although that doesn’t mean you can win more than once!
    5. The winners will be chosen entirely at random and notified once the competition has closed on 31st August 2011
    6. Please note, Kleinerts Sweat Shield Wipes free giveaway is open to North America residents only.

    Good luck!

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