November 15th, 2012Site News
Hello all, we have been talking and helping a young Gentleman who is currently making a new Iontophoresis machine. This could mean a better future for us all, less suffering from our dreaded Hyperhidrosis. If you can please take a few minutes out of your day to fill out the on-line survey.
Remember….our little voices can make ONE BIG ONE and help raise the awareness on living with this skin disease.
Let me introduce you to a wonderful young man,
Hello, My Name is Mark Gamwell and I thank you for this opportunity,
I am a fourth year Product Design student at Loughborough University. As part of my final year I must undertake an in-depth design project.
After careful thought and consideration, my choice of final year project has been greatly influenced by the experience of one of my friends who has suffered for several years from hyperhidrosis. Having been present at one of their iontophoreses treatments at an NHS hospital, I thought that the equipment used could have been designed in a more user friendly manner; however the treatment was very effective and relieved their symptoms greatly.
I am going to design and develop an iontophoreses machine that would be primarily used by people at home as well as in hospitals. I am now looking to conduct in-depth user research to help me develop a comfortable and user focused product.
My main areas of development from my initial research will be:
•User comfort during use.
•User’s ability to control while treating their hands.
•How information is displayed and user interaction.
•Allow for easier storage.
•Reduce cost whilst providing a quality product.
To ensure that I can design a product that addresses real user needs and desires, I need to gain first hand research from people who own and use these machines in their everyday life.
I want to find out what you like and enjoy about the machine you use, what you dislike and what really annoys you when using it.
The more information I can gather on how everyone interacts and uses their machine, the better understanding of what it is that really needs to be addressed in my redesign.
I really hope that with lots of support I can design a product that will be able to make a real difference and possibly allow me to approach the current manufacturers with a new and innovative idea that could possibly become a manufactured product that will go on sale.
Undergraduate Industrial Designer
Loughborough Design School
http://www.esurveyspro.com/Survey.aspx?id=cc3a1b21-c454-4c1a-af13-0f22d07d628cTags: disease, feet, hands, help, hyperhidrosis, iontophoresis, skin, sweat, sweating
August 28th, 2012Site News
If the trials all go well we could be seeing a new topical agent coming to us sufferers soon.
Want to thank my dearest friend for keeping us in the loop of new things for Hyperhidosis, your a gem
NEW ANTIPERSPIRANT HYDROGEL WITH ACETYLCHOLINE BLOCKING
MECHANISM: FIRST CLINICAL REPORT
INTRODUCTION AND DESCRIPTION OF THE NEW ANTIPERSPIRANT GEL
A new antiperspirant hydrogel has been projected and discovered based on an innovative
mechanism of action consisting on acetylcholine release partial blocking. This biochemical
mechanism is the main involved in eccrine sweat glands secretion and is the main issue to solve in
the patients suffering of hyperhidrosis. Generally patients suffering of moderate to severe grade
hyperhidrosis undergo to botulinum toxin sessions properly to block acetylcholine release and so
reduce sweating for several months and furthermore apply day by day very high percentage of
Aluminum chloride topical products to reduce excessive sweating. Botulinum Toxin is very
effective because blocks specifically proteins which induce acetylcholine release and so reduce
dramatically eccrine glands secretion; unfortunately injection of botulinum toxin is a strict specialist
medical practice and is not free from side effects, contraindications, allergic events and so on. Not
all the patients could be enrolled to apply botulinum toxin and many times these patients, impatient
to solve their embarrassing condition, provide to buy this drug from not legal channels and accept
to be treated from not specialized and skilled people. Furthermore, in the cosmetic landscape,
there’s only aluminum chloride products capable to produce acceptable results, but they are not free
from side effects as adenitis and skin irritations if applied every day.
This new cosmetic approach to hyperhidrosis has the main purpose to give an important opportunity
to all the patients suffering of hyperhidrosis allowing them to treat this condition with the same
mechanism of action of botulinum toxin, but without inject anything and simply applying a pleasant
and light hydrogel in the axilla, face, hands and forehead.
This gel contains an association of natural substances capable to reduce acetylcholine release in the
proximity of eccrine glands reducing contextually their secretion, exactly as botulinum toxin, but in
a very natural and not invasive way.
PRELIMINARY CLINICAL REPORT
20 patients suffering of moderate to severe grade hyperhydrosis have been tested under the
supervision of specialized dermatologists in the San Gallicano Hospital Dermatology Department in
These patients began application of this new gel (SNARE BLOCK), after two weeks from the
interruption of application of any other product for hyperhidrosis (aluminum chloride, long lasting
antiperspirant products etc.): they only applied short lasting deodorants and a common hygiene
These patients were educated to apply SNARE BLOCK two times a day (morning and night) in the
affected area taking care to induce a complete absorption of the gel in the skin area involved with a
light massage. No other products for hyperhydrosis were applied with the exception of common
deodorants with no antiperspirant molecules inside.
These patients came back to the clinic once a week to compile a clinical report under supervision of
a dermatologist in charge to carry out the clinical evaluation.
The parameters considered were:
- Grade of subjective satisfaction;
- Grade of pleasantness of application;
- Indication of “sweat reduction grade” in a graduated scale;
- Fast working effect grade;
- Objective clinical examination;
At the end of the 4 weeks, 18 patients declared to be:
- quite satisfied to highly satisfied of the efficacy of the product indicating a grade of “sweat
reduction” ranging from 6 to 8 in a graduated scale ranging from 0 for no effects to 10 for complete
satisfaction. 1 patient interrupted after only 2 weeks declaring that the product didn’t work and
another one interrupted after 3 weeks with no explanations;
- in a scale ranging from 0 to 10 for the “sweat reduction” parameter grade 2 patients reported a
score of 8 (high grade of reduction), 13 patients reported a score of 7 (moderate-high grade of
reduction); 3 patients reported a score of 4-5 (moderate grade of reduction);
- 16 patients declared to be satisfied in terms of pleasantness in a scale reporting these parameters: 2
patients not satisfied (bad sensorial effect in the skin), 7 patients moderately satisfied (acceptable
sensorial effect, but not very nice), 9 very satisfied (very good skin effect and nice to apply);
- 18 patients declared a quite slow working effect onset: 7 patients declared to feel first working
effect in sweating only after 15 days from the first application and the best effect after 18-20 days.
Please join us in our friendly forum on more about this new and exciting product, feel free to leave your questions and comments.
February 4th, 2012Site News
5 Causes of Excessive Sweating
Those of you new to the world of hyperhidrosis, or the medical term for excessive sweat, it can be a little confusing or even scary. However, there are many people who have the same condition as you. So we thought now would be a good time to discuss the several causes for excessive sweat below. As always, if you think all your sweating is something serious, please consult a physician. A good rule of thumb is if you are sweating when not doing anything physically or mentally strenuous on a regular basis, call a doctor.
1 Infection If you have excessive sweating and an infection, they might go hand in hand. While some infections can cause fever which leads to sweat, there are other kinds that can lead to excessive sweating without the high body temperature.
2 Diabetes Because diabetes is such a complex and mysterious disease, there can be many symptoms and side effects to medications. If you have excessive sweating and are diabetic, they might be linked.
3 Thyroid condition The thyroid is an important part of regulating hormones and many bodily functions. In either men or women, excessive sweating can be a sign of thyroid problems. If you think your excessive sweating might stem from a thyroid problem, consult your doctor or an endocrinologist who can run further tests.
4 Primary focal hyperhidrosis This is the most common cause for excessive sweating. It is even estimated that one to three percent of the population has it. It is not a major illness, it is simply a condition in which the person who has it sweats more than others. It can occur in a specific part, such as the underarms, and equally on both sides.
5 Secondary general hyperhidrosis This can be the sign of a serious medical condition and occurs when excessive sweating is happening all over the body for long periods of time at day and/or night. It is referred to as secondary because something else, and maybe serious, is causing it. A few of the diseases that can cause SGH are menopause, tuberculosis, arthritis, and even some cancers like leukemia and lymphoma.
Casey Roberts is a student and also writes for Radiology Assistant which helps students find the right radiology degree.Tags: cancer, causes, disease, excessive sweat, hyperhidrosis, menopause, primary, secondary, sweat
November 29th, 2011Site News
How Compensatory Sweating works:
The current train of thought is that our own inbuilt thermometer is faulty. This is called the Hypothalamus and it’s tucked away in the brain. This is what causes us to overheat. When the body’s temperature rises by 4 degrees C, we become disorientated and confused. By the time we reach 7 degrees C, we’d be dead. Because the body is such an amazing feat of natural engineering, we have an inbuilt sprinkler system to prevent us from overheating and to keep us alive. This is where the sweating comes from. When you block off any area of sweating, that’s all you’re doing. You’re not cooling yourself down. As you’re still hot, you’ll still be sweating until you cool down, it’s just that the sweat will appear in other areas and it’ll take longer to cool down as your sweating is limited. Blocking sweat is not the best way of dealing with it, although we all need to block in the odd area or two – ie underarms etc. It’s always a far better idea to soak up and disguise sweat than to block it.
CS as a result of ETS and Generalised Hyperhidrosis:
The main places ETS people suffer is down their back, torso, groin and legs. I would suggest products like laulas undershirts and polo shirts, www.sweat-help.com and Wrapps www.coolwrapps.com. Both of these products will deal with soaking up sweat by clever use of fabrics. I use both products and they certainly make life easier for me. Wrapps are also increasingly used by sportsmen and women, musicians etc as well as HH sufferers.
Please feel free to visit the site and dive into the forum conversations – or even just keep an eye out for competitions (we get to give away lots of free products) and hints and tips on disguising and dealing with your sweating.Tags: absorbent, clothes, clothing, disease, dripping, embarrassing, ets, excessive sweat, excessive sweating, forum, groin, hyperhidrosis, medical, surgery, sweat, sweating, sweaty, treatment, very sweaty betty, vsb, wrapps
November 16th, 2011Site News
AWARENESS on our disease.
When you see a Doctor or specialist most do not know the impact this has on us on the daily basics. They fob us off with yet another aluminum chloride treatment which burns your skin, sometimes leaving it so sore and takes weeks to heal.
Some of us have to educate the Doctor about Hyperhidrosis as they look at you blankly!!! I honestly don’t think much has changed in the last 5-10 years! I am in a constant argument with my Doctors for Botox as this is the only treatment that does give me relief. I dry out to much on oral medications and feel worse being on them.
Do you think we will ever get the awareness on this??? We see the clinical strength out on the market and I have read them all, only one says you may have Hyperhidrosis!!!! One out of lots!!! Adverts never tell you about it or commercials, the woman whom show there pits dry and arms up have never suffered from a days sweat or constantly worrying about it.
Who is ready to write a day in a life of a sufferer? I am and I will post them on the front page of our website for all to see. It is about time. Does not have to be long, just how it really is.
If you are interested then PM me, or drop Beverly a line email@example.com please put in topic line, GUEST BLOG A DAY IN A LIFE OF A SUFFERER. Or what you would like to be changed for the better of us, any ideas or suggestions will not be ignored.
We are the ones who can only help make the change, tell your Doctors and Medical staff how it really is, ask them to try the awful treatments they give us….
LOTS OF LITTLE VOICES CAN MAKE ONE BIG ONE XXXXXTags: disease, excessive sweat, excessive sweating, hyperhidrosis, medical, products, stress, sweat
November 13th, 2011Site News
I want to personally thank a new member for allowing us to post her story. She knows how important this is for us all in raising awareness on this awful skin disease, that brings us all misery every day of our lives.
This is a very moving story of inspiration, bravery and courage.
We want to thank you from the bottom of our hearts….
Anne and Beverly xxx
If you want to join in our cause on, “Raising Awareness” Join the cause, we have a section in the forum for this HAC, Hyperhidrosis Awareness Campaign, good things are happening.
I always say lots of little voices can make one big one. If you want to join our cause then please send your story to our very own Beverly at firstname.lastname@example.org She will be glad to post it on our front page and if requested all will be confidential. Thanks for helping us here at Very Sweaty Betty, your friendly sweaty support group.
Vicki’s story,My Story to date,I’m Vicki and I’m not ashamed to say that I am an Hyperhidrosis sufferer. It it embarrassing but I’m not ashamed.I have had Hyperhidrosis since I could walk. It started with my hands, feet and underarms and I noticed more at the tender age of 5-6 in Infant School. I used to have to write whilst I had a clump of tissue in my hand to wipe up the dripping sweat from the page. I also had to stuff rolled up tissue under my arms to stop my uniform from getting drenched.Summer time obviously the worst season for me, but it affected me all year through. Doctors used to tell me to hold my hands under cold water for a minute to cool them down, which did not work. I was then tried on something similar to Driclor where it was rolled on my affected areas and had to sleep with socks and plastic gloves on. This worked for a short while but then the sweat faught its way through!
When I approached 13 I was advised to go and see a Dematologist Consultant in Manchester Infirmary. They told me about the endoscopic thoracic sympathectomy surgery, also known as ETS. They told me that they would make a small incision in each arm pit and cut some glands to help cut down the sweating. They said that there was a possibility of the operation making my eyes droopy.As I was modelling at the time, my Mum thought it would be best for me to make this huge decision when I turned 18. So I just learned to live with it.Always ensuring I had tissue in my bag, I could never wear a top or dress without sleeves as there would be nowhere for me to put the tissue under my armpits. I hated having to shake hands with anyone, especially for job interviews as I would always have to explain myself (i still do).
Eventually, in 2003 when I was 21, I bit the bullet and decided to go for the ETS operation/surgery as I couldn’t live the way I was, being an Entertainer and in the public eye 24/7.I had a consulation first where they told me about collapsing my lungs during the op (something they never mentioned before) and the “slight” possibility of a “small” amount of sweating on my stomach as it would need somewhere else to go. I thought that I could cope with my stomach, if it stopped under my arms and hands (feet I could cope with).After the surgery, the first week was brilliant. I went back to Mallorca where I was working, then disaster struck!One night I literally couldn’t gasp for my breath. I was rushed into hospital and after 3 days of ECG and MRI scans/tests, they found fluid on my lungs, something that had accrued in Manchester Hospital.I was then in hospital for a further 7 days. Once sorted, I flew back home in the October and realised that my sweating was ridiculous. I didn’t think anything whilst in Mallorca due to the heat anyway. I found that my “slight” amount of sweating had increased to my forehead, back, stomach, armpits, hands, feet, legs. Basically EVERYWHERE!.There was nothing that Manchester Infirmary could do about it either. I did have Botox in my armpits for a short while in 2005, but my local hospital withdrew the funding unfortunately. Botox was brilliant and lasted for 6-8 months.
Since joining HSG and Very Sweaty Betty, I have found out about some bladder control pills called Oxybutynin. I consulted my GP who was more than happy to try me on them. I do notice a bit of a difference but with how severe my sweating is, I think that I will need to be increased to a bigger doseage.I now have my very own Iontorphoresis Machine because my local PCT won’t fund any sessions in hospital because in their words, “I am, low priority”!!!I will start using this, this week, so fingers crossed for my future. It is horrible living like this and not being able to wear cloths without sleeves; especially in the summer or dancing in a pub with tissue stuck to my forehead or shoes without tights/pop socks on, but i’m not ashamed to tell my story and increase awareness of this awful condition. Finally I do urge anyone who’s thinking of having ETS – PLEASE, DON’T DO IT!
Tags: antiperspirant, anxiety, botox, clothes, clothing, dermatologist, disease, embarrassing, ets, excessive sweat, facial, feet, groin, hands, hyperhidrosis, skin, summer, surgery, sweating, very sweaty betty, vsb
November 9th, 2011Site News
By our very own Denise, Following her, Help Wanted….
For the Record,
If any of you have read my last post, and thought I might be implying that Hyperhidrosis does not compare to scleroderma and we have no right to complain, that was not what I was trying to say, not at all.
My point is that Michele Mayer was a highly educated woman, her husband is in fact a physician, Moreover Michele was highly respected in the medical community, could speak the lingo, knew what she had and it still took 6 years to get a proper diagnosis. In that 6 years she was aware of what medications, procedures and protocols were available to treat the early stages of her disease.
Yet, because of her inability to get a proper diagnosis, all of these avenues were closed to her. We will never know if she could still be alive today, had she been diagnosed in a timely matter. Moreover, Michele had done her research and frequently went head to head with the doctors, who repeatedly tried to prescribe outdated medications, that had been shown to be wholly ineffective, while fighting her requests for another. Albeit, the truth is there is very little to help people suffering with Scleroderma. As her skin turned into a shell like structure, her vital and unseen organs were doing the same. This disease is a killer, very little is known how to treat it, and it is a death sentence. It may be 3 years it may be 5 years, but with the passing of each year, reduced mobility is a given as ones internal organs turn to stone.
Yet, Michele worked on her own memorial, did what she could with her children, and wrote about her life, her doctors, her friends, family, as the disease slowly turned every breath into a struggle. She had to fight the medical community every step of the way, as the disease continued to turn her internal organs into stone.
How do we proceed? Does any of us hold a Doctorate in Public Health? How do we proceed to get the attention of the medical community? How do we proceed? I continue to write letters, and be ignored. I sent a letter to a doctor here in town, he is mentioned in one of Suzanne Somers books as a surgeon who turned away from surgeries for excessive sweating to a more natural remedy. NOTHING, no response.
What should we do to be heard?
Help us fight to be heard, fight with us to be treated for our medical disease/disorder. We deserve this. Write you story on living with Hyperhidrosis, we are still in the, Dark Ages and will continue to be if we don’t stand our ground and help raise awareness. You can send your story to Anne, Beverly, Denise, kimberly in our friendly forum, we can keep it all confidential but our little voices, can make one BIG ONE. So please help.
If you have problems with groin sweating, please visit Denise’s website www.coolwrapps.comTags: anxiety, clothing, disease, excessive sweat, excessive sweating, hyperhidrosis, medical, support, sweaty, treatment, wrapps, www.coolwrapps.com
November 8th, 2011Site News
I really hope this inspires you all, it did for me. Thank you again my dearest friend, Denise, what a talent in writing you have and for sharing this great info and inspiration with us.
Last night I was watching the news and saw a story about a book: Our Bodies Ourselves, it was the 40th anniversary of the original publishing of the book. 40 years, wow, I have a copy of it and I had forgotten how much flap there was about the book back then. But there was a real bruhaha over this book and it was just a small group of women who started it. The horror of it all, a group of women, the Boston Women’s Health Book Collective had the unmitigated gall to gather information from women, about their own bodies, sharing information even Doctors were not giving their patients, and publish a book so millions of women would have access to information about their own bodies. There was a series of interviews (on the news) by many from so long ago, and some recent. Dr. Susan Love was talking about how this book was what in fact drove her when she was in medical school. As a student Susan Love was learning what was being taught to up and coming Ob/gyns, and it was sorely lacking.
This may be surprising to some, but to others, not so much. I believe the medical profession would prefer to go back to the good old days when any “female” complaint was simply treated with leaches. Fortunately, women are no longer banned from higher education allowed and vote, so it is highly unlikely that will happen. But at least it gives us a point of reference for what we are dealing with: The Medical Community.
Sometime ago I read a blog entitled: A Diary of a Dying Mom, by Michele Mayer. Michele Mayer started as a nurse, then went on to pursue a Masters and a Doctorate in Public Health, which earned her the title of Doctor. She was not a physician, but had achieved a rather lofty status, not that it helped her much. It took her over 6 years to be correctly diagnosed as having Scleroderma.
Repeatedly doctors told her she did not have this disease, and she honestly did not want it. There is no cure for Scleroderma, what it does is turn the skin into an exoskeleton, as well as vital organs, it is an autoimmune disease that starts up for no apparent reason. There is a medical term that indicates unknown origin, that escapes me at this moment…Idiopathic, is the term. At any rate, if you have the time to read it, you should read this blog. Yes, Michele Mayer died about 2 years ago, but what the lesson is: she lived, and battled the medical profession every step of the way, along with a disease that eventually took her life. Michele Mayer presented a paper detailing what is is to be a “difficult patient,” and how proud she was of it. Going against “the doctor” is not pleasant ; getting a doctor to listen to the patient is almost impossible.
SHOULD WE ALL WRITE A CHAPTER WHAT LIVING WITH HYPERHIDROSIS REALLY IS AND SELF PUBLISH IT?
Would it help? I CAN GET NO RESPONSE! I have written Dr. Love about Hyperhidrosis, I have written Dr. Oz. No response. That is all I get: nothing. But I am going to keep writing letters, in an attempt to be heard. Occasionally I go back and reread Michele Mayer’s paper on being “a difficult patient” and keep on, because I can. Hyperhidrosis is still a better card to draw than Scleroderma any day of the week.
I admire Denise as she stays so strong and refuses to give up. I also am battling with raising awareness on this, I feel like I hit brick walls daily. No one ever gets back to you or even members wont help. Were not asking a lot, a short story, blog on how it is to live with this skin disease daily. We are suffer daily and why not help ourselves along the path to get better treatment, a Doctor or medical staff who are trained to help us.
I’m tired of being fobbed off with another oral med that is not even related to my Hyperhidrosis, living in a fog from the side effects or another harsh topical treatment that burns our skin. PLEASE HELP.
November 3rd, 2011Site News
I have been asking for members help to try and get the awareness out for all to see and to encourage a guest blog on a day in their lives or a certain story you can share with us that shows what it is like.
I came up with the perfect title and many have agreed with me that it is perfect…how much has treatment really changed in the last 10 years?! Not much. ETS is less and being banned in certain countries around the world.
I would love to feature your story and let people see how we suffer from this awful affliction.
Think about it and get writing
Our first guest blog is our very own Denise, she is such a talented lady and an amazing friend. Denise also invented the Wrapps, www.coolwrapps.com which have saved many of us from embarrassing situations. Denise is a very talented writer also, enjoy.
The Dark Ages, Living with Hyperhidrosis
For many of us, we have discovered that most health care providers are wholly unable to understand what it is to be the patient. Largely because, they are the Doctor and have spent years of their lives learning about body parts. Sadly, that is reflected in treatment of the current ailment, sprained ankle, migrain headache, or broken bone that necessitated your visit. You are simply a body part, to be attended to. The whole person insignificant. This is the American way; to treat pregnancy as a disease; while we have managed to turn our birth rate into one that rivals any third world nation in the world. How did things come to be this way? Moreover, is there anything we do to change it? It will be an uphill battle, but having lived for as long as you have with Hyperhidrosis, can you think of any better training?
A while back, Dr. Oz did another segment on hh. The advise to those of us suffering from HH was simple: “wear a little extra deoderant and don’t worry about it.” Though I had sent Dr. Oz an email on a previous occasion, this was too much. I wrote Dr. Oz a letter asking him to please refrain from doing any more segments on HH. I asked Dr. Oz how many times in a day did he advise the application of deoderant on the scalp, back, back of the knees, etc. Explained to Dr. Oz that I understood he did not believe in HH.
I had a doctor (here where I live,) who did not believe in depression, and refused to write me a prescription for antidepressants. I understand Dr. Oz does not believe in HH, this other doctor did not believe in depression. But it is still hurtful to those of us who suffered from either, or both. So please stop doing segments on HH, it is only hurting us as you do not have a clue.
I sent the letter to his TV show, in New York, and it was returned to me, unopened, with a big black question mark by my name on the return address. I immediately looked up his work adress, and enclosed an other note on top of the unopened, returned letter about how he really knew how to make his viewers feel important, and put it back in the mail. No, I have not heard from him. I do not expect to. He is an important man, a Doctor, for crying out loud. He does not have time to listen to his viewers, he has to do a surgery, a show. He is a busy man, much to busy to learn that he does not know what he is talking about. Why should he listen to his viewers or patients? We did not go to medical school, he did. And that appears to be the prevailing attitude of most doctors, the M.D. stands for Major Diety. It does not, and I am so tired of this attitude. The medical community can not even decide if drinking coffee is good or bad for us, for crying out loud. Why do doctors have the right to decide which disease they believe in, or treat? Why? This I do not know. I do know, that it is difficult to find a decent doctor, one that will listen. And if it takes raising our voices to be heard, or voting with our feet, each of us must decide which course of action to take.
Denise, we feel your pain and know how frustrating this is, how about you get in touch with my good friend Dr Danial Carrasco. He was the only one who fully knew about living with HH, his brother suffers from this disease and he was patient and understanding. He also trains other Doctors about Hyperhidrosis. I doubt I will ever find another Dr so understanding again.
Dr Carrasco is our Doctor on board, if you have private questions to ask him in regards to your Hyperhidrosis PM myself, Anne, Beverly, Denise or Kimberly and we will make sure he gets your questions.
The Dark Ages is open for all comments and if you want to feature your guest blog, please let me know on the forum or our Sweaty Betty FaceBook page and we can make this happen.
Lots of little voices can make one huge voice, lets get heard and lets make a difference.
October 30th, 2011Site News
Want to thank our member and guest for this wonderful blog. You are a pure gem.
If you want to help us RAISE AWARENESS on living with Hyperhidrosis, please join in our cause. We are one of the highest viewed sites and our Alexa ratings are high. What could be better than trying to get our little voices out to make one big one.
I have had palmer hyperhydrosis since I can remember (I’m 25) and it has caused me no end of bullying through school with people not wanting to hold my hand etc. I have tried all the creams available and, although they work well to an extent, they make my hands so dry and sore that I can’t use them for any length of time.
Since having my son I have also developed it in my armpits (and also a bit in my feet though not quite as bad) and now my problems have really started.
I work in a high school as a learning support assistant, and even though I wash everyday and use various deodorants etc. throughout the day, I have kids refusing to sit with with me because ‘I smell’ and now have my boss on to me trying to get occupational health involved as she has had ‘complaints from other staff’ about my condition.
I have explained many times that I am doing all I can to control my condition and that the last time I spoke to a doctor about it I seemed to know more than they did! (So basically don’t think HE will tell me anything I don’t already know!)
Also I myself do not always notice any odor so I need the other staff support to tell me, but to no avail. They are even telling me that if I don’t “SORT OUT THE PROBLEM” then I may not be able to CONTINUE WITH MY JOB!
I am also suffering with work related stress at the moment which is only exacerbating my condition, and now with them ‘on my back’ about it it is only getting even worse in both respects! (The only strategy they have suggested to ‘help’ is that I change my clothes at regular intervals during the day. With the amount I sweat this would be about every 2 hours or so to avoid any trace of sweat patches or smell so I would need 3 changes of clothes everyday at work! Plus I could just imagine the kids asking “Why have you changed your top Miss?” So it is just not practical in my view!
I also have a problem with my amateur dramatics society when, at the last minute I was given a very thick, hot cloak to wear onstage. I informed them of my condition and that I would be likely to faint with the heat and loss of water if I had to wear it, (I once came VERY close to fainting onstage in the past and only just made it backstage before I literally collapsed in a chair!) I was told to “GROW UP AND GET ON WITH IT“! “EVERYONE SWEATS”, and finds the cloaks hot but they just get on with it!” Evey night of that show I used to just about make it through the scene and then have to rush to sit on a chair and drink loads of sports drink before I was fit for anything. even then if one of the older members wanted the chair I was expected to give it up as I was ‘Just being silly!’
I really think more should be done to, PROMOTE AWARENESS, for this condition to the general public and medical staff, as people seem to have no idea about how debilitating this condition is or how hard it is to ‘just deal with it’. They seem to think we can just stop the sweating but we can’t!
How we can all relate to this, what would you advise our kind member? We all suffer the same. Please join us in our battle to raise awareness on this awful affliction we all share. Feel free to leave comment, join us in our forum www.verysweatybetty/forum
The more we help the STRONGER WE BECOME.
Tell us your story, join the forum to make this possible, help for the better cause.