VerySweatyBetty.com

If the trials all go well we could be seeing a new topical agent coming to us sufferers soon.

Want to thank my dearest friend for keeping us in the loop of new things for Hyperhidosis, your a gem

NEW ANTIPERSPIRANT HYDROGEL WITH ACETYLCHOLINE BLOCKING
MECHANISM: FIRST CLINICAL REPORT
INTRODUCTION AND DESCRIPTION OF THE NEW ANTIPERSPIRANT GEL

A new antiperspirant hydrogel has been projected and discovered based on an innovative
mechanism of action consisting on acetylcholine release partial blocking. This biochemical
mechanism is the main involved in eccrine sweat glands secretion and is the main issue to solve in
the patients suffering of hyperhidrosis. Generally patients suffering of moderate to severe grade
hyperhidrosis undergo to botulinum toxin sessions properly to block acetylcholine release and so
reduce sweating for several months and furthermore apply day by day very high percentage of
Aluminum chloride topical products to reduce excessive sweating. Botulinum Toxin is very
effective because blocks specifically proteins which induce acetylcholine release and so reduce
dramatically eccrine glands secretion; unfortunately injection of botulinum toxin is a strict specialist
medical practice and is not free from side effects, contraindications, allergic events and so on. Not
all the patients could be enrolled to apply botulinum toxin and many times these patients, impatient
to solve their embarrassing condition, provide to buy this drug from not legal channels and accept
to be treated from not specialized and skilled people. Furthermore, in the cosmetic landscape,
there’s only aluminum chloride products capable to produce acceptable results, but they are not free
from side effects as adenitis and skin irritations if applied every day.
This new cosmetic approach to hyperhidrosis has the main purpose to give an important opportunity
to all the patients suffering of hyperhidrosis allowing them to treat this condition with the same
mechanism of action of botulinum toxin, but without inject anything and simply applying a pleasant
and light hydrogel in the axilla, face, hands and forehead.
This gel contains an association of natural substances capable to reduce acetylcholine release in the
proximity of eccrine glands reducing contextually their secretion, exactly as botulinum toxin, but in
a very natural and not invasive way.
PRELIMINARY CLINICAL REPORT
20 patients suffering of moderate to severe grade hyperhydrosis have been tested under the
supervision of specialized dermatologists in the San Gallicano Hospital Dermatology Department in
Rome.
These patients began application of this new gel (SNARE BLOCK), after two weeks from the
interruption of application of any other product for hyperhidrosis (aluminum chloride, long lasting
antiperspirant products etc.): they only applied short lasting deodorants and a common hygiene
protocol.
These patients were educated to apply SNARE BLOCK two times a day (morning and night) in the
affected area taking care to induce a complete absorption of the gel in the skin area involved with a
light massage. No other products for hyperhydrosis were applied with the exception of common
deodorants with no antiperspirant molecules inside.
These patients came back to the clinic once a week to compile a clinical report under supervision of
a dermatologist in charge to carry out the clinical evaluation.
The parameters considered were:
- Grade of subjective satisfaction;
- Grade of pleasantness of application;
- Indication of “sweat reduction grade” in a graduated scale;
- Fast working effect grade;
- Objective clinical examination;
At the end of the 4 weeks, 18 patients declared to be:
- quite satisfied to highly satisfied of the efficacy of the product indicating a grade of “sweat
reduction” ranging from 6 to 8 in a graduated scale ranging from 0 for no effects to 10 for complete
satisfaction. 1 patient interrupted after only 2 weeks declaring that the product didn’t work and
another one interrupted after 3 weeks with no explanations;
- in a scale ranging from 0 to 10 for the “sweat reduction” parameter grade 2 patients reported a
score of 8 (high grade of reduction), 13 patients reported a score of 7 (moderate-high grade of
reduction); 3 patients reported a score of 4-5 (moderate grade of reduction);
- 16 patients declared to be satisfied in terms of pleasantness in a scale reporting these parameters: 2
patients not satisfied (bad sensorial effect in the skin), 7 patients moderately satisfied (acceptable
sensorial effect, but not very nice), 9 very satisfied (very good skin effect and nice to apply);
- 18 patients declared a quite slow working effect onset: 7 patients declared to feel first working
effect in sweating only after 15 days from the first application and the best effect after 18-20 days.

Please join us in our friendly forum on more about this new and exciting product, feel free to leave your questions and comments.  

5 Causes of Excessive Sweating

Those of you new to the world of hyperhidrosis, or the medical term for excessive sweat, it can be a little confusing or even scary. However, there are many people who have the same condition as you. So we thought now would be a good time to discuss the several causes for excessive sweat below. As always, if you think all your sweating is something serious, please consult a physician. A good rule of thumb is if you are sweating when not doing anything physically or mentally strenuous on a regular basis, call a doctor.

1 Infection If you have excessive sweating and an infection, they might go hand in hand. While some infections can cause fever which leads to sweat, there are other kinds that can lead to excessive sweating without the high body temperature.

2 Diabetes Because diabetes is such a complex and mysterious disease, there can be many symptoms and side effects to medications. If you have excessive sweating and are diabetic, they might be linked.

3 Thyroid condition The thyroid is an important part of regulating hormones and many bodily functions. In either men or women, excessive sweating can be a sign of thyroid problems. If you think your excessive sweating might stem from a thyroid problem, consult your doctor or an endocrinologist who can run further tests.

4 Primary focal hyperhidrosis This is the most common cause for excessive sweating. It is even estimated that one to three percent of the population has it. It is not a major illness, it is simply a condition in which the person who has it sweats more than others. It can occur in a specific part, such as the underarms, and equally on both sides.

5 Secondary general hyperhidrosis This can be the sign of a serious medical condition and occurs when excessive sweating is happening all over the body for long periods of time at day and/or night. It is referred to as secondary because something else, and maybe serious, is causing it. A few of the diseases that can cause SGH are menopause, tuberculosis, arthritis, and even some cancers like leukemia and lymphoma.

Casey Roberts is a student and also writes for Radiology Assistant which helps students find the right radiology degree.

Forum link

How Compensatory Sweating works:

The current train of thought is that our own inbuilt thermometer is faulty. This is called the Hypothalamus and it’s tucked away in the brain. This is what causes us to overheat. When the body’s temperature rises by 4 degrees C, we become disorientated and confused. By the time we reach 7 degrees C, we’d be dead. Because the body is such an amazing feat of natural engineering, we have an inbuilt sprinkler system to prevent us from overheating and to keep us alive. This is where the sweating comes from. When you block off any area of sweating, that’s all you’re doing. You’re not cooling yourself down. As you’re still hot, you’ll still be sweating until you cool down, it’s just that the sweat will appear in other areas and it’ll take longer to cool down as your sweating is limited. Blocking sweat is not the best way of dealing with it, although we all need to block in the odd area or two – ie underarms etc. It’s always a far better idea to soak up and disguise sweat than to block it.

CS as a result of ETS and Generalised Hyperhidrosis:

The main places ETS people suffer is down their back, torso, groin and legs. I would suggest products like laulas undershirts and polo shirts, www.sweat-help.com and Wrapps www.coolwrapps.com. Both of these products will deal with soaking up sweat by clever use of fabrics. I use both products and they certainly make life easier for me. Wrapps are also increasingly used by sportsmen and women, musicians etc as well as HH sufferers.

Please feel free to visit the site and dive into the forum conversations – or even just keep an eye out for competitions (we get to give away lots of free products) and hints and tips on disguising and dealing with your sweating.

Thank you for your blog Lisa! It sounds very familiar to me, with friends like that, who needs enemies? **big hugs**

Me and my annoying friend hyperhidrosis i cant get rid of.

I wake up suddenly with my hair stuck to my face and my pj’s clinging to my body, I throw the duvet off and jump out of my sweaty bed. Glancing at the temperature I see 12 degrees today in my house…..yet it still feels like 30 degrees as i’m burning up. Grab a cold drink, sit down and calm myself down.

Time to get ready for the day….highs of 15 degrees today. White t-shirt, jeans and thin black cardi. I fling the bathroom window wide open, feeling the cold air on my face whilst brushing my teeth. Start applying my make up, I’m tempted to turn my mini fan on but I battle through this morning. Scrape my hair back and clip the loose hair back. I wish I could straighten my hair but this friend of mine doesn’t let me straighten it and if he does within 10 minutes of walking out the door he has made it a curly wet mess.

Grab my bag, and pull my coat on…..attempting to look normal and avoid catching a cold. I’m running late for my doctors appointment, a 10 minute brisk walk and i’m there. Now I could be wrong but I’m sure I have walked into a sauna…..I quickly strip down to my t-shirt and push open a window. Only to get moaned at by an old lady complaining its cold with the window open. I want to scream at her, she’s sitting there in her coat rosy cheeked, I’m sitting there in a t-shirt sweat pouring everywhere. I stumble into the doctors room and get through my appointment in a soggy mess. I can’t bare to put my coat on so walk come without it on.

Strip down for 10 minutes before I need to leave for my follow up dermatologists appointment. Surprise surprise Im sure the doctor made them turn the heating off and open all the windows so its cold in the waiting room. I get called in, instructed to strip and told Im not sweating. Plucking up the courage to tell her to shove her hand in my undies when a male nurse flies in and I back out. My pills didn’t work. Her response? It’s only sweating you are just going to have to live with it. Oh how much I wished something like freaky Friday would have happened right then!!

I head into town finding it unbearable. I find it ironic that the shops turn their heating on to encourage custom. Any hot shops don’t get my custom I walk straight out.

Get the phone call about my car. It’s not worth fixing…..the sweat pours just thinking of the stressful few days to follow. Arrive at the garage to pay the man just in a t-shirt, he comments about how I must be freezing. I brush it off and get out of there as quick as I can.

Finally home, I chuck on some joggers and a vest. Time to start on dinner. Fling the kitchen windows wide open, prepare my kitchen towel to dab my face and crack on. Eventually get though cooking.

Bath time, my favourite part of the day. I let the cold water run into the bath 5 minutes before i get out. Sit down in my towel drying off and get into my pyjamas.

Bed time with half my body outside of the duvet and half my body under the duvet I finally get to sleep. Another day over in what seems like a hell hole.

My name is Lisa and I’m a generalized sweater, my friend hyperhidrosis insists on introducing himself first every day.

Hello all,

I thought I would approach this subject as most of us seem to be complaining about what to wear, what if I sweat.  We all have the, “What If’s?”
I know I am, and as time is getting closer to Thanksgiving, Christmas office parties, dinners, dances, Ball’s, schools plays, shopping we all tend to suffer from pre-festivity panic.

We tend to panic and make ourselves worse than what we began.  If we just looked at this simply we could erase a lot of our, “What If’s”
If you are like me and my life has been so busy this year has flown and were here again!  I am currently getting ready to move and I have a big ball approaching.  I have tried to get out of it but looks like I am going to have to attend.  I have been listening to the other wife’s and their excitement on dresses and hair do’s and such and I wish or I pray I could also get as excited as them and wear the lovely clothing.  But in reality I can’t!

I have thought about going back on my oral medication for a few weeks but I am still battling a sinus infection and will probably not help matters right now.

Can you join me in making a list on what we should do and what we should not do?  Here are some of my sugestions.
If daytime office lunch, dress in layers and battle your way like a rugby player, American Football player, to get that seat next to the window, and as the lunch begins and you feel your sweating arrive, take off your layers, ask to open up the window and if your a woman blame it on a hot flash…yes we do have an advantage on that one, sorry Gentlemen.

If an office party, again dress in layers and make believe your an onion and peal them off, also if windows available use them or take in a power hand fan or use a folder to cool you down lol..I’m beginning to smile here now as have been there done all the above and will carry on.

Thanksgiving dinner, Christmas dinner..one of the worst as so much preping and cooking can make for a hot hell hole before it even begins, If you can make sure someone else cooks or go out..laughing hard now! 

OK, if you are cooking then do what I always do, buy a already cooked turkey and prepare most of your sides and deserts the day and evening before, takes off so much stress and you can sweat all over everything and they will never know, with 5 fans blowing on you from every angle, kidding about the dripping in food sweat…tee-hee!

Dressing for the occasion can be the hardest of them all and the daunting task we all fear….What am I going to wear that wont show my sweating, wishing you could just crawl into a dark hole and remain there.  I would advise a very light material or dinner jacket, nothing that is going to cling to the body or create more heat. 

I swear by dark clothing, hides a multitude of sins, including sweating..ha!  I love black and silver as they look so good together, a bit of bling and you can’t go wrong.  What I have found helps also is wear some glimmer lotion as if the sweat does arrive you can’t really see it, or as my girls like to call it, Fairy dust

For our hand sweaters, I encourage a cold or half frozen water bottle always remain in your hands and you can use the frozen water melting as your excuse.  Also have a face cloth hidden in a pocket or purse.  For head sweaters also, go to the bathroom and mop down! 

For the ones whom like to have a few drinks, like me, I always have two beers before as this will trigger my sweating and once my body has had the initial shock of alcohol it will not be bad as first arriving and having a drink!!!  I tend to go bright red in the chest, neck and face…I wear a shawl and large jewelry to try to hide this.

So my dear friends, members, fellow sweaters, brother and sisters, I encourage you to add your little secrets on what you do to keep the sweat at bay.

Will you be on the naughty or nice list this year?  Hee hee…you can use your imagination and help others achieve less sweat this SEASON.
Hugs,

Anne x

 AWARENESS on our disease.

When you see a Doctor or specialist most do not know the impact this has on us on the daily basics. They fob us off with yet another aluminum chloride treatment which burns your skin, sometimes leaving it so sore and takes weeks to heal.

Some of us have to educate the Doctor about Hyperhidrosis as they look at you blankly!!! I honestly don’t think much has changed in the last 5-10 years!   I am in a constant argument with my  Doctors for Botox as this is the only treatment that does give me relief.   I dry out to much on oral medications and feel worse being on them.

Do you think we will ever get the awareness on this???   We see the clinical strength out on the market and I have read them all, only one says you may have Hyperhidrosis!!!! One out of lots!!!  Adverts never tell you about it or commercials, the woman whom show there pits dry and arms up have never suffered from a days sweat or constantly worrying about it.

Who is ready to write a day in a life of a sufferer? I am and I will post them on the front page of our website for all to see. It is about time. Does not have to be long, just how it really is.

If you are interested then PM me, or drop Beverly a line betty@verysweatybetty.com please put in topic line, GUEST BLOG A DAY IN A LIFE OF A SUFFERER.  Or what you would like to be changed for the better of us, any ideas or suggestions will not be ignored.

We are the ones who can only help make the change, tell your Doctors and Medical staff how it really is, ask them to try the awful treatments they give us….

LOTS OF LITTLE VOICES CAN MAKE ONE BIG ONE XXXXX

I want to personally thank a new member for allowing us to post her story.  She knows how important this is for us all in raising awareness on this awful skin disease, that brings us all misery every day of our lives. 

This is a very moving story of inspiration, bravery and courage. 
We want to thank you from the bottom of our hearts….

Anne and Beverly xxx

If you want to join in our cause on, “Raising Awareness” Join the cause, we have a section in the forum for this HAC, Hyperhidrosis Awareness Campaign, good things are happening. 

I always say lots of little voices can make one big one.  If you want to join our cause then please send your story to our very own Beverly at betty@verysweatybetty.com   She will be glad to post it on our front page and if requested all will be confidential.  Thanks for helping us here at Very Sweaty Betty, your friendly sweaty support group.

Vicki’s story,

By our very own Denise, Following her, Help Wanted….
For the Record,

If any of you have read my last post, and thought I might be implying that Hyperhidrosis does not compare to scleroderma and we have no right to complain, that was not what I was trying to say, not at all.

My point is that Michele Mayer was a highly educated woman, her husband is in fact a physician, Moreover Michele was highly respected in the medical community, could speak the lingo, knew what she had and it still took 6 years to get a proper diagnosis. In that 6 years she was aware of what medications, procedures and protocols were available to treat the early stages of her disease.

Yet, because of her inability to get a proper diagnosis, all of these avenues were closed to her. We will never know if she could still be alive today, had she been diagnosed in a timely matter. Moreover, Michele had done her research and frequently went head to head with the doctors, who repeatedly tried to prescribe outdated medications, that had been shown to be wholly ineffective, while fighting her requests for another. Albeit, the truth is there is very little to help people suffering with Scleroderma. As her skin turned into a shell like structure, her vital and unseen organs were doing the same. This disease is a killer, very little is known how to treat it, and it is a death sentence. It may be 3 years it may be 5 years, but with the passing of each year, reduced mobility is a given as ones internal organs turn to stone.

Yet, Michele worked on her own memorial, did what she could with her children, and wrote about her life, her doctors, her friends, family, as the disease slowly turned every breath into a struggle. She had to fight the medical community every step of the way, as the disease continued to turn her internal organs into stone.

How do we proceed?   Does any of us hold a Doctorate in Public Health? How do we proceed to get the attention of the medical community? How do we proceed? I continue to write letters, and be ignored.   I sent a letter to a doctor here in town, he is mentioned in one of Suzanne Somers books as a surgeon who turned away from surgeries for excessive sweating to a more natural remedy. NOTHING, no response.

What should we do to be heard?

Help us fight to be heard, fight with us to be treated for our medical disease/disorder.  We deserve this.  Write you story on living with Hyperhidrosis, we are still in the, Dark Ages and will continue to be if we don’t stand our ground and help raise awareness.  You can send your story to Anne, Beverly, Denise, kimberly in our friendly forum, we can keep it all confidential but our little voices, can make one BIG ONE.  So please help.

Denise

If you have problems with groin sweating, please visit Denise’s website www.coolwrapps.com

Hello all,

I have been asking for members help to try and get the awareness out for all to see and to encourage a guest blog on a day in their lives or a certain story you can share with us that shows what it is like.

I came up with the perfect title and many have agreed with me that it is perfect…how much has treatment really changed in the last 10 years?!  Not much.  ETS is less and being banned in certain countries around the world. 

I would love to feature your story and let people see how we suffer from this awful affliction.

Think about it and get writing

Our first guest blog is our very own Denise, she is such a talented lady and an amazing friend.  Denise also invented the Wrapps,  www.coolwrapps.com which have saved many of us from embarrassing situations.   Denise is a very talented writer also, enjoy.

The Dark Ages, Living with Hyperhidrosis

For many of us, we have discovered that most health care providers are wholly unable to understand what it is to be the patient. Largely because, they are the Doctor and have spent years of their lives learning about body parts. Sadly, that is reflected in treatment of the current ailment, sprained ankle, migrain headache, or broken bone that necessitated your visit. You are simply a body part, to be attended to. The whole person insignificant. This is the American way; to treat pregnancy as a disease; while we have managed to turn our birth rate into one that rivals any third world nation in the world. How did things come to be this way? Moreover, is there anything we do to change it? It will be an uphill battle, but having lived for as long as you have with Hyperhidrosis, can you think of any better training?

A while back, Dr. Oz did another segment on hh. The advise to those of us suffering from HH was simple: “wear a little extra deoderant and don’t worry about it.”   Though I had sent Dr. Oz an email on a previous occasion, this was too much. I wrote  Dr. Oz a letter asking him to please refrain from doing any more segments on HH.   I asked Dr. Oz how many times in a day did he advise the application of deoderant on the scalp, back, back of the knees, etc.   Explained to Dr. Oz that I understood he did not believe in HH.

I had a doctor (here where I live,) who did not believe in depression, and refused to write me a prescription for antidepressants.   I understand Dr. Oz does not believe in HH, this other doctor did not believe in depression. But it is still hurtful to those of us who suffered from either, or both.   So please stop doing segments on HH, it is only hurting us as you do not have a clue.

I sent the letter to his TV show, in New York, and it was returned to me, unopened, with a big black question mark by my name on the return address.   I immediately looked up his work adress, and enclosed an other note on top of the unopened, returned letter about how he really knew how to make his viewers feel important, and put it back in the mail. No, I have not heard from him. I do not expect to. He is an important man, a Doctor, for crying out loud.   He does not have time to listen to his viewers, he has to do a surgery, a show. He is a busy man, much to busy to learn that he does not know what he is talking about.   Why should he listen to his viewers or patients? We did not go to medical school, he did. And that appears to be the prevailing attitude of most doctors, the M.D. stands for Major Diety. It does not, and I am so tired of this attitude. The medical community can not even decide if drinking coffee is good or bad for us, for crying out loud. Why do doctors have the right to decide which disease they believe in, or treat? Why? This I do not know.   I do know, that it is difficult to find a decent doctor, one that will listen. And if it takes raising our voices to be heard, or voting with our feet, each of us must decide which course of action to take.

Denise

Denise, we feel your pain and know how frustrating this is, how about you get in touch with my good friend Dr Danial Carrasco.  He was the only one who fully knew about living with HH, his brother suffers from this disease and he was patient and understanding.  He also trains other Doctors about Hyperhidrosis.  I doubt I will ever find another Dr so understanding again.

Dr Carrasco is our Doctor on board, if you have private questions to ask him in regards to your Hyperhidrosis PM myself, Anne, Beverly, Denise or Kimberly and we will make sure he gets your questions.
The Dark Ages is open for all comments and if you want to feature your guest blog, please let me know on the forum or our Sweaty Betty FaceBook page and we can make this happen.

Lots of little voices can make one huge voice, lets get heard and lets make a difference.

Want to thank our member and guest for this wonderful blog. You are a pure gem.

If you want to help us RAISE AWARENESS on living with Hyperhidrosis, please join in our cause.  We are one of the highest viewed sites and our Alexa ratings are high.  What could be better than trying to get our little voices out to make one big one.

My story,

I have had palmer hyperhydrosis since I can remember (I’m 25) and it has caused me no end of bullying through school with people not wanting to hold my hand etc.   I have tried all the creams available and, although they work well to an extent, they make my hands so dry and sore that I can’t use them for any length of time.

Since having my son I have also developed it in my armpits (and also a bit in my feet though not quite as bad) and now my problems have really started.

I work in a high school as a learning support assistant, and even though I wash everyday and use various deodorants etc. throughout the day, I have kids refusing to sit with with me because ‘I smell’ and now have my boss on to me trying to get occupational health involved as she has had ‘complaints from other staff’ about my condition.

I have explained many times that I am doing all I can to control my condition and that the last time I spoke to a doctor about it I seemed to know more than they did!  (So basically don’t think HE will tell me anything I don’t already know!)

Also I myself do not always notice any odor so I need the other staff support to tell me, but to no avail.   They are even telling me that if I don’t “SORT OUT THE PROBLEM” then I may not be able to CONTINUE WITH MY JOB!

I am also suffering with work related stress at the moment which is only exacerbating my condition, and now with them ‘on my back’ about it it is only getting even worse in both respects! (The only strategy they have suggested to ‘help’ is that I change my clothes at regular intervals during the day. With the amount I sweat this would be about every 2 hours or so to avoid any trace of sweat patches or smell so I would need 3 changes of clothes everyday at work! Plus I could just imagine the kids asking “Why have you changed your top Miss?”   So it is just not practical in my view!

I also have a problem with my amateur dramatics society when,  at the last minute I was given a very thick,  hot cloak to wear onstage.   I informed them of my condition and that I would be likely to faint with the heat and loss of water if I had to wear it,  (I once came VERY close to fainting onstage in the past and only just made it backstage before I literally collapsed in a chair!)   I was told to “GROW UP AND GET ON WITH IT“!                                                                             “EVERYONE SWEATS”,  and finds the cloaks hot but they just get on with it!”   Evey night of that show I used to just about make it through the scene and then have to rush to sit on a chair and drink loads of sports drink before I was fit for anything. even then if one of the older members wanted the chair I was expected to give it up as I was ‘Just being silly!’

I really think more should be done to, PROMOTE AWARENESS,  for this condition to the general public and medical staff,  as people seem to have no idea about how debilitating this condition is or how hard it is to ‘just deal with it’. They seem to think we can just stop the sweating but we can’t!

How we can all relate to this, what would you advise our kind member?  We all suffer the same.  Please join us in our battle to raise awareness on this awful affliction we all share.  Feel free to leave comment, join us in our forum www.verysweatybetty/forum

The more we help the STRONGER WE BECOME.

Tell us your story, join the forum to make this possible, help for the better cause.