Why Can We Not Get Treatment For Our Hyperhidrosis? It Has Been Classed As A Skin Disease, Please Listen To Us Sufferers!0June 10th, 2011Site News
I have been feeling so frustrated since last week thinking I was going to receive my Facial, Cranial Botox as a Hyperhidrosis treatment.
We drove 50 miles round trip and waited almost 45 minutes to be seen by my lovely Dermatologist, when she took me back I placed my bag on the window sill next to the procedure bed thinking this is where I would have my treatment done. I could see her looking and she told me to sit in the chair near her. (I thought she prob wants to go over the side effects and make sure all meds were the same?!)
I sat and waited and she smiled weakly and said, “The are not allowing you to have the Botox treatment as they see if as a cosmetic procedure rather than a medical treatment!”
She apologized and I know in my heart if she could have made it happen she would.
I was gob smacked and told her I thought I was having it done? I said the her nurse had called telling me so?! She said she was sorry for this and that it was a miss communication. She thought it best to have her deliver the news in person rather than over the phone. I told her thank you and asked why! All I wanted to do was burst into tears and scream.
She said they saw it as a cosmetic thing rather than a medical treatment and I challenged her and said big organizations claim that most insurance companies are now seeing Botox as the big treatment for this and why wont mine? She said they don’t understand, they don’t get it! Even though it stated all the other tried treatments failed.
I then proceeded on and said, “do they think I want a wrinkle free scalp and hair line?” I’m not asking to have this done any where else! I could see if I was having it done around my eyes and other areas. She replied they just dont get it. I them told her how this affects me on a daily basics. She gets it, she really does but her hands were tied.
How are they EVER GOING TO GET HOW IT EFFECTS US ON A DAILY BASICS??? Can anyone answer this? Until they walk in our sweaty bodies, they never will or if they have a close family or friend who suffers to really see the draining impact of life and hyperhidrosis. They will never know how we turn down social events and fear ones we have to attend because they don’t understand or get it!
They will never know how we hide behind closed doors or wear dark clothing to disguise the sweating. How we feel dirty and what it feels like to have to live in wet clothing. To suffer yeast infections on our skin and chaff from the sweating. How afraid we are of having to shake a hand or hold something. How we have to change clothing often and ruin our clothing because of the smell and sweat stains that wont come out. How we slip and slide in shoes or make them so wet and funky we have to replace them often. How normal activities for everyone else turn into a sweaty night mare for us. The fear of hot weather and humidity.
How would they feel, if they walked in our bodies for a week?
Do you think Hyperhidrosis would be more accepted and treated better?
I have a member in the forum the same way as I was a week ago!! Crushed and in tears as she was told she could not have the oral medication they prescribe for this (even though it is not for Hyperhidoris) but used as one of the side effects is less sweating! We take them because of this, regardless of their horrid side effects and dangers of being in prolonged daylight. We take them because they give us some relief and peace of mind from the endless sweating. Just like we do with hundreds of needles if WE ARE GRANTED, Botox or Dysport as a treatment for this. The only treatment currently to give us a few months break and less of the horrible side effects but it is like liquid gold, hard to get! Do we blame the manufacturer or maybe Doctors or even the public for making it this way? It is seen as a cosmetic procedure for vanity but what can give SUFFERERS OF HYPERHIDROSIS relief we are denied!
What can I tell her?!
I can give her the support and comfort she deserves as she is a beautiful human being who suffers and has become a dear friend. She suffers daily not only physically but emotionally as they go hand in hand. The emotional round about we are on daily would swing your head! The thought and preparation of a day in a sufferers life if there is an social event would have you a basket case too!
How do I tell her that everything is going to be OK? How do I tell myself? With not having professionals understanding this skin disease, WHO IS?
I have a big event coming up in two weeks and had to pay for my own treatment, most are not cheap.
I have to give a big shout out to my wonderful Dermatologist in Austin, Dr Daniel Carrasco who does understand and did help at a discounted price.
We need more understanding on this and compassion from professionals. More awareness need to be raised and if your with me let me know and we can fight against this together. There needs to be more cheaper treatments available for us that don’t burn our skin, dry us out or can even cause heat stroke.
I hope you understand and I pray to God that one day we will all get the treatment we deserve while living with this social killer, self confidence drainer and self esteem robber sore, they call HYPERHIDROSIS.Tags: anxiety, botox, clothes, clothing, cranial, dermatologist, disease, embarrassing, excessive sweating, facial, groin, heat, hiperhidrosis, hyperhidrosis, sweat, very sweaty betty
December 24th, 2010Site News
Another in our guest blogging series. This time the blog concentrates on a whole family’s experiences with Klima Products for their various personal fights with Hyperhidrosis.
Our thanks to go Klima for very kindly supplying the products.
Klima antiperspirant spray:
My name is Tim. I have always sweat more than usual. It was sometimes annoying, but I learned to live with it. What else are you going to do? I sweat excessively on my feet, chest, back, head and armpits. I don’t believe it is all that much more than others until someone points it out. More often, I just sweat in situations where normally someone wouldn’t sweat. I am 37 year old and in recent years, I have learned from a friend that we have a condition called Hyperhidrosis. My friend recently introduced me to a product from Klima to help reduce the sweating. I have to admit it works almost too well. When I used the antiperspirant spray from Klima, it completely stopped the sweating on my feet. It mostly stopped sweating on my back and chest as well. After I had used the Klima antiperspirant for a few days in a row, I only had to use it every few days for it to work. I now use it even less often, usually on occasions where I really don’t want to be seen sweating.
Klima HyperDri Facade:
User, my son Ryan. Ryan is 12 years old and sweats excessively on his head and face. I was excited to hear about Facade from a friend because it was made especially for craniofacial hyperhidrosis (facial sweating). I was also excited to try the product out on my son because it is aluminum free and I don’t like over loading my son on aluminum products at such a young age because cancer runs in my family. The first week on the product I only noticed about a 20% decrease in my sons sweating but by the second week it worked a lot better with about a 50% decrease in his sweating but I did notice compensatory sweating on the top of his head. I would like to see Klima produce an aluminum free shampoo that my son could use and cut down on his entire heads sweating. I would also like to see an all over body wash. My son also tried Klima’s Hyperdri antipersperant gel for the body. He applied it under his arms in the morning for 3 weeks. It worked well and kept him dry under the arms for most of the day. It does irritate the skin if applied after a shower. Make sure you wait until completely dry to apply. Ryan also said it burns a little anyway. This product is completely aluminum free as well. The 1.7 oz. bottle only last for about 3 weeks.
Klima HyperDri Freshfoot:
User, my daughter Clare. Clare is 9 yrs old and has sweaty, stinky feet and is starting to show signs of facial sweating. My friend recommended that I try freshfoot gel for Clare’s feet. The product was aluminum free which I love. I would apply the product before she would put on her slip on tennis shoes. I bought a new pair of shoes so that I could tell how well the product was working. She picked a black pair of no tie, slip on, tennis shoes.. After three weeks of using the product her shoes didn’t have the white salt stains that sweat creates and they still smelled pretty good. Her last pair of tennis stunk so bad that I could smell them from the back seat while I was driving and they made me gag. I would always have to buy a new pair of cheap tennis shoes each month because of this. Clare did complain of a slight burn when the gel was first applied and by the end of the bottle of gel her feet started to peel from dryness.
Bone Dri antiperspirant roll on:
User, Jackie age 43. I was given two bottles of this roll on by my neighbor to try. I sweat the most under my arms and bra line. I absolutely LOVED this product. It glided on easily and dried quickly and would keep me dry for 24 hrs. I would even spread it under my breasts. It worked great!! The 2 bottles only lasted about 5 weeks though.
Klima’s YouTube videos
Klima Antiperspirant Deodorant
Klima Stop Hand Sweating
Klima Sweaty Hand Solutions
Direct links to Klima’s YouTube videosTags: antiperspirant, cranial, excessive sweating, facial, feet, hiperhidrosis, klima, treatment, underarms
June 2nd, 2010Site News
One of our fellow HH sufferers has invented an amazing product to help with truncal Hyperhidrosis – excessive sweating in the groin.
Wrapps are super comfortable. They’re made of the softest most absorbent cotton and lined with muslin for extra comfort. You can change into clean dry Wrapps whenever you feel the need. The used Wrapps just go through your normal washing machine programme. How simple is that! I love it!
It attaches to both women’s and men’s underwear and absorbs excess moisture – or even heavy sweating!
During the past countless number of years, I’ve had to live my life in black – black jeans and in the summer, black cotton/linen cropped trousers – as it’s one of the colours that doesn’t show much sweat. Having said that, if I sit on any seat that isn’t made of cloth material (for instance a plastic chair), I always leave my sweaty crotches imprint. I tell you, plastic chairs are the devil’s work.
I’ve tried Denise’s Wrapps and I have to say I’m utterly sold on them. I didn’t know I was wearing them. It’s a bit of a dream come true for me, if I sweat in my groin area, it simply doesn’t show. I’m looking forward to wearing some white or light coloured cropped trousers this summer and might even attempt a dress or skirt. Stranger things have happened. The last time I wore a skirt, I had sweat running down my legs in little rivers, seeping into my shoes for my feet to slide around in. The chafing was so painful and the sheer embarrassment I suffered knowing that someone might spot the rivers was excrutiating.
Another thing I’m looking forward to – fewer yeast infections because my bits are kept nice and dry. My longest bout of thrush was two years. Not on-and-off – it was two long years as in 730 DAYS. Along with my trusty acidophilus capsules, garlic capsules and now the Wrapps, I think my thrush days are completely over. I’ve not had a single tingle in weeks!
Denise ships her Wrapps all over the world and they come in packs of 2, 6 & 12. As they’re made from natural materials, the more you wash them, the softer they become.Tags: absorbent, amazing, coolwrapps, down below, dripping, dry, easy care, excessive sweating, groin, hiperhidrosis, hyperhidrosis, men, parts, private area, product, soft, sweat, sweaty, truncal, trunk, unisex, wet clothes, women, wrapps
May 25th, 2010Site News
Wanted to let everyone no the good news! My Botox treatment has been approved though my insurance. I can have facial, cranial and axillary treatment.
Lets hope it’s soon as this Texas heat is just about turning me into a recluse again. Humidity levels are in the 90% and Temps are high 90′s by the end of the week and holiday weekend could reach high 90′s to 100′s…awwwwhhhhh Read the rest of this entry »Tags: botox, cool, cranial, disease, excessive sweat, facial, heat, hiperhidrosis, humid, hyperhidrosis, insurance companies, skin, temperature, treatment
May 10th, 2010Site News
Hyperhidrosis, or excessive sweating, is a skin disease which produces a lot of unhappiness. It is estimated by the medical profession that 2-3% of people all around the world suffer from excessive sweating. Non-medically speaking, the figure could easily be far, far higher. In our experience, many people only find out they have Hyperhidrosis because they stumble across the name of it by accident. Many people don’t want to bother their doctor because they think it’s ‘just them’. There are many reasons why people can go throughout life and never mention it to anybody. Read the rest of this entry »Tags: acute, acutely, adolescence, anxiety, armpit, awareness, axillar, axillary, business, cancer, clothes, complicates, consequences, dating, diabetes, diagnosis, disease, eat, embarrassing, emotional, excessive sweating, feet, forum, generalised, genuine, global, grip, gustatory, hands, healthy, heat, help, hide, hiperhidrosis, humidity, hyperhidrosis, hyperhidrotic, interactions, internet, isolating, love, medical, miserable, misery, palmar, plantar, practical, primary, raise, raising, ruins, secondary, self esteem, shake hands, silence, silent, skin, social, socially isolating, soles, solutions, stains, stress, support, sweat, sweaty, sweaty betty, symptom, symptoms, taboo, treatments, trigger, unaware, underarm, underlying, very sweaty betty, vsb, work