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VerySweatyBetty.com

Hyperhidrosis Support Group
VSB: Raising awareness about hyperhidrosis and offering impartial support and advice to sufferers
  • scissors
    May 30th, 2011VSB BeverlySite News

    Excessive sweating – Hyperhidrosis

    Excessive sweating is a skin disease called Hyperhidrosis.  One of the most common mistakes a non-sweater makes is to pigeon-hole the sweater as dirty, smelly, unhygienic, lazy, hilarious, and thinks sweating can be miraculously cured by having a shower and applying antiperspirants.

    What causes the sweating?

    Excess sweating is just one symptom of Hyperhidrosis.  Everybody has an internal thermometer.  Our bodies function at a set temperature.  When our temperature rises just 4 degrees C, our body panics and becomes confused. If our temperature rises by only 7 degrees C, we die.  If you have Hyperhidrosis, your core temperature can’t be controlled in the normal way, your internal thermometer is broken. You become hotter and hotter until your body starts to panic which causes you to sweat profusely to cool down again.  Once your temperature has risen, it takes such a long time to subside that you can be soaked through from head to foot within minutes and there’s nothing you can do about it except hope that nobody notices. Not easy when you’re at the shops, work or school – or anywhere out of the safe confines of your own four walls. This causes many sufferers to become virtual hermits, especially in the hotter weather.

    This is why we created our website. We have both suffered for many years from this disease and realised that there are millions of people worldwide who don’t know it’s a disease, they think it’s ‘just them’.  3% of the population suffer, although this figure could be higher as not everyone has access to, or consults, a doctor. Unfortunately, many doctors are unaware this condition has a name, let alone is a disease. We want to help people like us who have been through the personal hell that makes you wonder why you bother, and realise that there are things (not cures, unfortunately) you can do to help minimise the effects of sweating – hopefully meaning nobody else will notice.

    We share everything on VSB, tips, new medical trials, procedures, stories etc, and we are lucky enough to personally trial a lot of products from many different trustworthy companies. If a product doesn’t work then we say so. Very useful when you’re wading through the rather overwhelming array of different products and their promises.

    Although we have sponsors, we don’t personally make any money from our website – we give our time and expertise for free. What money we do make goes back into projects such as raising awareness of Hyperhidrosis, we are passionate about this.

    Our site is guaranteed virus free – every link is to a tried-and-tested company with products that work for people like us.

     

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  • scissors
    May 13th, 2011VSB AnneSite News
    A VSB member has brought up a good point and always a good one to chat about.
    “When you see a stranger sweating do you tell them they could have Hyperhidrosis?”
    Do you tell anyone about your condition, or do you try to cope as best as possible and hide away?

    I have found it better to be open about it, may come with age and sick of people staring and making me feel like a freak…Talking and telling does help, even if it is just close friends and family!

    I do tell now,  this helps the embarrassing situation and stops people staring, what do you do?

    “Members answers and the wonderful support we all share together”

    I’ve started to be more open about it.   I still feel very awkward when people stare at me when I sweat but I just tell it like it is!   If they have nothing better to do than stare at me that’s their problem, not mine!
    Family and friends are more understanding.
    Strangers are the worst, but I can’t hide forever so that’s not a viable option. We all just have to cope as best we can, in the open, with the stares and uncomfortable explanations!
    C’est la vie.
    My week just got better since I got out of my exam this afternoon, I didn’t soak through my answer sheet so I’m in a good mood.
    Well done, takes a brave person to come out about it.  Took me years and now there is no stopping me :) hugs dear friend and glad you survived your exams.
    The conversation started because we both were complaining about the heat. I had my little fan out and she admired it, so the timing was perfect. I guess you have to discern when you think it’s appropriate to talk about it. I saw a guy on a subway train about 10 days ago and the AC wasn’t working in that subway car.
    He was having a conversation with a woman and was wearing a suit.   I could see before he started wiping his face that he was going to start melting. He just started wiping the sides of his face around his hair before he started dripping.
    He didn’t take off his suit jacket to make it cooler for himself, presumably because of the woman he was with. I figured it wasn’t a good time to say something but I wanted to say “Take that jacket off! You’ve got HH and I know what you’re feeling!”
    LOL I got off the car as soon as it stopped and go into the next one where the AC worked so I don’t know how bad he got.
    I’ve just (after living with this for about 20 years) have made the bold decision to be OPEN about this.   Half of my battle with HH is the metal part, I get so darn anxious!!
    I was talking with someone about it recently and she pointed out… that my sweating doesn’t hurt anyone!   There are so many worse things out there.
    Now if I’m open about something that I cannot control, perhaps I will feel better about making accommodations, such as bringing a towel.
    If I’m open I won’t feel weird about never wearing sandals, or wiping my face all the time or having some pit stains.   I sweat, and it’s just a part of me!
    I used to have shame associated with my HH.   Perhaps because I was made fun of when I was little and no one would touch me.
    As an adult I have done a full turn.   I am very open about my HH.   It really is a mental struggle.   It is who we are!
    “Actually, everyone accepts it”
    If someone wants to turn their nose up at me, I don’t need that person in my life!  Of course I don’t tell everyone that I come into contact with but those people who are a part of my life should know.
    If I am standing in line holding a ticket and my hands are dissolving it, I will just start fanning it and say “I am sweating to death! I am about to melt away this ticket!”   I seem to joke it off.
    Maybe that’s not healthy but it gets me through.
    People seem to make stupid comments when they see me sweat!   I just get annoyed with that.  If I see someone with bad rosacea for exmaple I don’t run up and say “OMG your face is so red!
     

    Hi everyone, I am new to this page!  I have suffered with HH for a few years now!  I am just starting to tell family and friends about it,which is really difficult!   It causes anxiety (then sweating).
    I have tried to live the best I can with it, but at times it is sooo hard.  I have struggled with many daily activities which does get me down!
    I have had the iontophoresis which did not work!   I have just had the botox last week in my palms, which in some ways seems to be working!
    I really do not want the ETS surgery!  Talking to other sufferers of HH really helps my confidence, as it is only you who can understand!
    So glad you joined and talking about this.  Always helps when your around others who also have HH, how are your hands feeling? Are you noticing any changes yet? Are they still swollen?
    Hi, no they are not swollen anymore, but they are still going blue and are extremely cold!  My right wrist is still painful, so I have been to the doctors this morning!  The sweating has started to come back, but it is now down the sides of my fingers and it is also on the tops of my hands!
    Is this normal?
    I feel for you!   I don’t have sweaty palms or feet but my face, head and back are like a effing faucet!
    It’s only 71 degrees today and if I stood perfectly still in the shade I wouldn’t have been sweating but as soon as I feel the heat from the sun or walk, I’m sweating. I couldn’t wait to get to the office because the AC is on today!
    I am afraid of the surgery but I swear the thought of going through another summer as a sweatbox is making me wish I could have the surgery.
    I had thought about Botox of my hands too but was advised against it.   I did have it done on my underarms.
    There are just too many nerves close to the surface of the hands.
    I do not recommend the ETS at all!
    I take oral meds and they have been a great help to me but not everyone has had luck with them.   In fact I forgot to take it today and have been sweating more than usual.   Slipping around in my shoes and my hands are dripping as I type.
    I so HATE this!
    Not so blue today, wrist still hurts though!  Sweat is pouring down the sides of my fingers!
    I had the botox because I had already tried the ionto treatment which did not work and the only other option I had was the surgery,which I really don’t want!
    Which oral meds do you take?  I use anhydrol forte for underarms which works really well, does sting a bit at first, but at least it works!
    Dreading summer, but I sweat a lot in winter too!
    I sweat all year round, it’s central heating that switches me on..were never really free of it. I have used Robinul, Ditropan, Detrol LA, have you used Oxybutrin.
    For more info and support please visit,
    http://verysweatybetty.com
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  • scissors
    June 9th, 2010AdminSite News

    We’re proud of you Bev!!

    VSB Member Beverly Stacey has written an article for ezinearticles.com and has been today awarded the prestigious status of ‘expert Author’ – see her profile here: http://ezinearticles.com/?expert=Beverly_Stacey

    Here’s an extract of the article:

    Hyperhidrosis, or excessive sweating, is a skin disease which produces a lot of unhappiness. It is estimated by the medical profession that 2-3% of people all around the world suffer from excessive sweating. Non-medically speaking, the figure could easily be far, far higher. In our experience, many people only find out they have Hyperhidrosis because they stumble across the name of it by accident. Many people don’t want to bother their doctor because they think it’s ‘just them’. There are many reasons why people can go through life and never mention it to anybody. For me it was a taboo for almost 40 years and created a lot of self-loathing. I mentioned it to a few family doctors over the years, all of them shrugged their heads, they had no knowledge of excessive sweating.

    READ THE FULL ARTICLE HERE:

    http://ezinearticles.com/?Could-You-Have-Hyperhidrosis?&id=4425668


    As Featured On EzineArticles

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